posted
Compared to most of the people I read about, I
find it strange how I found out I had Lyme. I
started having bad chest pains and went to the
ER. First my EKG was abnormal but was released. A
couple days later went to another ER with chest
pains that was worse. I was diagnosed with
Pleurisy. With a follow-up with my family doctor
blood test were done with Lyme test and came
back with a positive ELISA and western blot
(labcorp test). Now I had no other symptoms
associated with Lyme until I started antibiotics
(doxycycline and now have joint pain, nausea,
fatigue). Now my question...does this sound right
to you? It just doesn't sound like the typical
way most people find out they have Lyme (if there
is a typical way). I hope this isn't silly for
me to be asking this. Thanks all.
Posts: 23 | From Southern Maine | Registered: Jun 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Hello jsturner. Yes it is very common to have the
symptoms you describe but uncommon to get a
positive test. Which is why most of us are here in
the first place. Unfortunately mine came back with
a report of one band migrating in the IgG region
unable to identify right before I experienced lung
involvement diagnosed as histoplasmosis, and for
which I was sick for over a year more. Including
chest pains and abdominal pains unable to
diagnose. Docs
always say you will get worse before you get
better. But the good thing is at least you know
and can treat. You can learn a lot here as I did.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
jsturner I had the same thing for 6 months straight with no other symptoms except severe shortness of breath. It was really strange and totally unexplainable. Abnormal ekg, that's about it, lots of ER visits. Then mine exploded into lots of neuro symptoms almost overnight and a week later the bottom of my feet hurt so bad I could barely walk on them--I was also turning very pale. I knew I had blood disease(s) then.
Why I had only those symptoms for that long is a total mystery just like everything else with lyme + co.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
js,
welcome to the board and glad you found us. no you are NOT silly and your story is very unique!
usually its the other way around, such as joint pain, fatigue and then maybe heart issues. some are plagued with mainly neuro symptoms.
i also had the chest pains, shortness or breath, and abnormal EKG that showed possible heart block and was sent to a cardiologist immediately.
of course they found nothing abnormal about my stress eccho.
a few months later, i was tested for lyme at my suggestion, and it was ... you guessed it.. lyme of course.
just in case you are new to the board i'm going to attach this document which is a guideline by the top lyme doc in the us.
you may want to print for future use, or you may already have a copy of it.
i'm so hoping you are already looking for a lyme literate doctor in your area that follows the ILADS protocol.
also, there are other bugs that travel with lyme that are called coinfections. you may want to be tested for those once you get situated with an LLMD.
you can also visit 'seeking a doctor' at the front of this board.
good luck and keep us posted on your progress.
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I truly believe nothing is "normal" when it comes to Lyme and co-infections. The path of destruction within the body is unique to each person.
The unusual thing is that you actually had a positive test result. Most of us get false negatives until we test with Igenex
Best wishes in your healing.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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