Does anyone have strange, paralyzing feelings after eating? I have been tested for everything.
Sick for over 16 years
Have had periods where I have been ok. Then relapse.
Tested positive per CDC for Lyme and I am psitive for Bartonella.
Never had treatment.
Too many symptoms to list.
My ? is that I have had episodes where I just know something is wrong.
I get this undescribable feeling. Scary.
Legs get weak sometimes painful.
I get "paralyzed"for a short period of time. I can't swallow, breathe, feels like pressure all through me. Jaws lock up. Scary as heck.
I don't what this is. I just got a biopsy also for celiac. I though u either had it or not.
The doc said, well, you have the beginnings of it. If u want to follow a celiac diet u can. That made no sense to me.
Another weird thing... a lot of times when I eat I get this ffeling in my neck like someone has there hands around it. My ears are full of pressure, can't clear throat.
I thought maybe it was an allergy. I was tested onm skin and by blood...nothing food related came back.
I have had so many symptoms over the years. I have had headaches I thought would kill me, loss of feelings in legs, arms, face, etc..
Nothing has scared me like this is... no one can help me. If anyone has any ideas on this please let me know.
I can't find anyone who has had these reactions.
Thank you
Posted by Leelee (Member # 19112) on :
I don't have the problem you do after eating, but I do have the feeling of being choked (to death, in my case). I also have the air pressure in my head and ears feeling , and a gummy lump in my throat.
I attribute these symptoms to Babesia.
Posted by btmb03 (Member # 18394) on :
Katc, forgive my Lyme brain - but did you say you were "CDC positive for Lyme and bartonella" but that you haven't had any treatment?
If so, why not? What has prevented you from seeking an LLMD? Not being nosy, just concerned. Posted by sutherngrl (Member # 16270) on :
I too have the feeling of being choked, not neccessarily after eating.
Posted by glm1111 (Member # 16556) on :
You might have Bells Palsy of the gut(paralysis)I have it and it can cause some scary feelings.
Google Virgina Sherr who is a doctor who wrote a very informative article on this.
Sorry you are suffering with this,
Gael
Posted by katc (Member # 17210) on :
I live in NC... doctors here told me my reults must be false positive and there's no way I could have had Lyme all these years.
I am seeing a new ID doctor whom does believe in Lyme and bartonella, waiting on lab results. He took 23 viles of blood.
I am just really concerned over this paralysis thing. I forgot to mention it has happened 2 other times not attributed to food.
It happened after a bee sting and after taking Symbicort.
I 've been stung a million times before,. I am not allergic. And if I was now, it would not have gone away, right?
It's like my body is thinking "certain things" are a threat or something.
It's not a panic attack. That much I know. I am terrified of heights, so getting on a plane or roller coatser preety much sends me in to a panic.
These episodes are NOTHING like that. Not to mention I had no reason to even have anxiety when these episodes have occured.
After them I also get dehydration symptoms. Unbelievable urination and cramping.
I am so confused by this.
Posted by seibertneurolyme (Member # 6416) on :
Katc,
So sorry you are feeling so bad.
Hubby has had many different gastrointestinal problems from his Lyme and bartonella and babesia.
What a lot of people may not be aware of is that during the normal process of digestion blood is diverted to the stomach and liver. That means less blood is available to get to the brain. And also the vagus nerve which is one of the longest nerves in the body goes from the stomach to the brain.
One of the newest treatments for epilepsy is to implant a vagal nerve stimulator in the brain. I have read that it helps about 50 % of the people and makes the other 50% have more seizures.
Anyway, eating is one of hubby's symptom triggers. He used to start shaking and have what looked like seizures after eating. Treatment for bartonella or mycoplasma has helped with this symptom.
I would suggest that you follow the gluten free diet. You might have an intolerance to gluten which is not the same as either an allergy or actual celiac disease (which is genetic). You may have heard of lactose intolerance. It is kind of like that -- you body for some reason does not digest gluten correctly. This is fairly common in Lyme patients. The problem may possibly go away after treatment for tickborne diseases.
As for the bee sting -- actually a person can become allergic to something like that at any point in their lives.
Don't believe anyone who tells you there is no Lyme disease in North Carolina. That just is not true.
You need to be your own advocate. You know you are sick and don't let anyone convince you otherwise.
Good luck.
This is not medical advice, just my opinion based on hubby's experiences.
Bea Seibert
Posted by Shosty (Member # 12232) on :
There are food allergies/intolerances that do not show up on blood tests. Maybe you could try an elimination diet, eliminating all possible allergens (gluten, dairy, citrus, nuts, eggs,soy, tomatoes..I am probably forgetting something) then after a couple of weeks, reintroduce things one at a time, in small amounts, and if there is no reaction, then you can eat them again, but if there is a reaction, eliminate the food permanently.
It is unclear if you have celiac from what you describe, but if it is "beginning," then read up on what exactly has gluten in it and read labels carefully.
It is also not clear why you haven't been treated for Lyme if you test positive.
You can have more than one problem going on and there can also be some synergy so that the problems aggravate each other.
Posted by TxLymie (Member # 20847) on :
I've had that strange paralyzed feeling in my neck before. Can't swallow and at the same time start to get headache type pain.
It has only happened a few times but it scared me to death. To me it felt like my carotid artery was bulging and I was about to have a stroke or something.
Each time it has happened it only lasted maybe 30 seconds and then went away. Never happened while eating.
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