posted
Does anyone have strange, paralyzing feelings after eating? I have been tested for everything.
Sick for over 16 years
Have had periods where I have been ok. Then relapse.
Tested positive per CDC for Lyme and I am psitive for Bartonella.
Never had treatment.
Too many symptoms to list.
My ? is that I have had episodes where I just know something is wrong.
I get this undescribable feeling. Scary.
Legs get weak sometimes painful.
I get "paralyzed"for a short period of time. I can't swallow, breathe, feels like pressure all through me. Jaws lock up. Scary as heck.
I don't what this is. I just got a biopsy also for celiac. I though u either had it or not.
The doc said, well, you have the beginnings of it. If u want to follow a celiac diet u can. That made no sense to me.
Another weird thing... a lot of times when I eat I get this ffeling in my neck like someone has there hands around it. My ears are full of pressure, can't clear throat.
I thought maybe it was an allergy. I was tested onm skin and by blood...nothing food related came back.
I have had so many symptoms over the years. I have had headaches I thought would kill me, loss of feelings in legs, arms, face, etc..
Nothing has scared me like this is... no one can help me. If anyone has any ideas on this please let me know.
I can't find anyone who has had these reactions.
Thank you
Posts: 117 | From Winston Salem NC | Registered: Sep 2008
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I don't have the problem you do after eating, but I do have the feeling of being choked (to death, in my case). I also have the air pressure in my head and ears feeling , and a gummy lump in my throat.
I attribute these symptoms to Babesia.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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btmb03
Unregistered
posted
Katc, forgive my Lyme brain - but did you say you were "CDC positive for Lyme and bartonella" but that you haven't had any treatment?
If so, why not? What has prevented you from seeking an LLMD? Not being nosy, just concerned.
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I too have the feeling of being choked, not neccessarily after eating.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
You might have Bells Palsy of the gut(paralysis)I have it and it can cause some scary feelings.
Google Virgina Sherr who is a doctor who wrote a very informative article on this.
Sorry you are suffering with this,
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Hubby has had many different gastrointestinal problems from his Lyme and bartonella and babesia.
What a lot of people may not be aware of is that during the normal process of digestion blood is diverted to the stomach and liver. That means less blood is available to get to the brain. And also the vagus nerve which is one of the longest nerves in the body goes from the stomach to the brain.
One of the newest treatments for epilepsy is to implant a vagal nerve stimulator in the brain. I have read that it helps about 50 % of the people and makes the other 50% have more seizures.
Anyway, eating is one of hubby's symptom triggers. He used to start shaking and have what looked like seizures after eating. Treatment for bartonella or mycoplasma has helped with this symptom.
I would suggest that you follow the gluten free diet. You might have an intolerance to gluten which is not the same as either an allergy or actual celiac disease (which is genetic). You may have heard of lactose intolerance. It is kind of like that -- you body for some reason does not digest gluten correctly. This is fairly common in Lyme patients. The problem may possibly go away after treatment for tickborne diseases.
As for the bee sting -- actually a person can become allergic to something like that at any point in their lives.
Don't believe anyone who tells you there is no Lyme disease in North Carolina. That just is not true.
You need to be your own advocate. You know you are sick and don't let anyone convince you otherwise.
Good luck.
This is not medical advice, just my opinion based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Shosty
Unregistered
posted
There are food allergies/intolerances that do not show up on blood tests. Maybe you could try an elimination diet, eliminating all possible allergens (gluten, dairy, citrus, nuts, eggs,soy, tomatoes..I am probably forgetting something) then after a couple of weeks, reintroduce things one at a time, in small amounts, and if there is no reaction, then you can eat them again, but if there is a reaction, eliminate the food permanently.
It is unclear if you have celiac from what you describe, but if it is "beginning," then read up on what exactly has gluten in it and read labels carefully.
It is also not clear why you haven't been treated for Lyme if you test positive.
You can have more than one problem going on and there can also be some synergy so that the problems aggravate each other.
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posted
I've had that strange paralyzed feeling in my neck before. Can't swallow and at the same time start to get headache type pain.
It has only happened a few times but it scared me to death. To me it felt like my carotid artery was bulging and I was about to have a stroke or something.
Each time it has happened it only lasted maybe 30 seconds and then went away. Never happened while eating.
But I do 'get' the scary feeling....
-------------------- TxLymie IgG-Negative IgM - Postive bands 23 and 41
Other dx: 2000: Endometriosis 2009: Chronic EBV, Mycoplasma infection, HHV6, H.pylori Posts: 297 | From Houston | Registered: Jun 2009
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