I cannot take minocycline. As much as my doctor wants me to, I just can't. The migraines were torture.
So, I was wondering if doxycycline is easier to take (I know everyone is different), and if it could also help with the severe brain fog that is my worst symptom.
Thanks so much,
brooke
Posted by seekhelp (Member # 15067) on :
My LLMD told me last week Mino is so much easier to tolerate than Doxy. He's treated thousands of patients.
Posted by brooke (Member # 16606) on :
Well it's very difficult for me so maybe I'm in the minority? It hits me like a ton of bricks, even 25 mgs.
Posted by HaplyCarlessdave (Member # 413) on :
Brooke, you are probably having the "Herxheimer reaction" This is fairly common, and could well indicate that the Minocycline is decimating the Lyme. But there are many factors. You may also have one or more "coinfections"- additional infections that the ticks were carrying.-- these can make a huge difference in how you respond to a treatment too. Doxy, and probably mino, too, are effective against the common (in some parts of the country, including coastal New Jersey, where I was bit..) coinfection, ehrlichiosis. Doxy is kind of hard on the gut. For me, Yarrow and psyllium seed were helpful; I occasionally took some of both of these several times when I was having G.I. trouble, from doxy (and cefuroxime axefil, an ora cephalosporin). DaveS
Posted by brooke (Member # 16606) on :
Thanks for your reply. I would rather have stomach problems than head problems. It makes me so out of it and I'm already out of it, if you know what I mean.
Also, is sun sensitivity really as bad as people say it is? Maybe that's what she's worried about.
brooke
Posted by sixgoofykids (Member # 11141) on :
The sun sensitivity is horrible. I got sun poisoning through the car window with sunscreen on ... I had to wear gloves to drive .... and it wasn't even summertime.
Sounds like you are having a cognitive herx with the mino ... the mino is known for helping with cognitive problems.
Posted by kelmo (Member # 8797) on :
Brooke. My daughter had to start at 50mg of mino once a week and sloooooowwly work up to 200mg/daily.
But, I can tell you, that once it took hold, it worked the best for her neurolyme. She is taking college classes now.
Posted by brooke (Member # 16606) on :
The sun sensitivity does kind of scare me. Is it a common side effect or does it just affect some people?
kelmo, I might have to do the 25 mgs once a week too, if my doctor keeps insisting. It's just so hard to feel worse when you already feel horrible.
Thanks for the replies.
Posted by Kreynolds (Member # 15117) on :
I have taken IV Doxy and oral Doxy and am now on oral Mino.
I find that the Mino is hitting everything harder than the Doxy was.
It also breaks the BB barrier better than Doxy.
I know it stinks to feel so bad, but maybe like mentioned above, it's a Herx. Thats a good thing.
I am currently at 200mg a day and will be moving to 400mg a day next week.
Best Wishes!
Posted by brooke (Member # 16606) on :
Does doxy cause migraines like mino? That's another reason I'm worried. I had so many migraines the last time I took it. I think I spent more time in bed than anywhere else.
brooke
Posted by btmb03 (Member # 18394) on :
Hi brooke, I had a ton of gut issues with doxy but no increase in headaches/migraines...was also on mino for an unrelated reason years ago and didn't notice any difference either.
Macrolides have been worse for me re: migraines/headaches and sometimes I can't distinguish that from a sinus HA either. Weird.
Good luck!
Posted by hope4sofia (Member # 20577) on :
I haven't taken mino but I can verify the sun sensitivity with doxy. I have chronically burned arms and nose regardless of wearing 85 sun screen, hats, and sleeves most of the time.
Other than that. I had headaches at first but, once I got through those, the side effects haven't been bad.
Posted by brooke (Member # 16606) on :
Thanks to everyone who replied. I'm not sure what I'm going to do yet.