posted
I cannot take minocycline. As much as my doctor wants me to, I just can't. The migraines were torture.
So, I was wondering if doxycycline is easier to take (I know everyone is different), and if it could also help with the severe brain fog that is my worst symptom.
Thanks so much,
brooke
Posts: 117 | From PA | Registered: Aug 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
My LLMD told me last week Mino is so much easier to tolerate than Doxy. He's treated thousands of patients.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Well it's very difficult for me so maybe I'm in the minority? It hits me like a ton of bricks, even 25 mgs.
Posts: 117 | From PA | Registered: Aug 2008
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posted
Brooke, you are probably having the "Herxheimer reaction" This is fairly common, and could well indicate that the Minocycline is decimating the Lyme. But there are many factors. You may also have one or more "coinfections"- additional infections that the ticks were carrying.-- these can make a huge difference in how you respond to a treatment too. Doxy, and probably mino, too, are effective against the common (in some parts of the country, including coastal New Jersey, where I was bit..) coinfection, ehrlichiosis. Doxy is kind of hard on the gut. For me, Yarrow and psyllium seed were helpful; I occasionally took some of both of these several times when I was having G.I. trouble, from doxy (and cefuroxime axefil, an ora cephalosporin). DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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posted
Thanks for your reply. I would rather have stomach problems than head problems. It makes me so out of it and I'm already out of it, if you know what I mean.
Also, is sun sensitivity really as bad as people say it is? Maybe that's what she's worried about.
brooke
Posts: 117 | From PA | Registered: Aug 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
The sun sensitivity is horrible. I got sun poisoning through the car window with sunscreen on ... I had to wear gloves to drive .... and it wasn't even summertime.
Sounds like you are having a cognitive herx with the mino ... the mino is known for helping with cognitive problems.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Brooke. My daughter had to start at 50mg of mino once a week and sloooooowwly work up to 200mg/daily.
But, I can tell you, that once it took hold, it worked the best for her neurolyme. She is taking college classes now.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Does doxy cause migraines like mino? That's another reason I'm worried. I had so many migraines the last time I took it. I think I spent more time in bed than anywhere else.
brooke
Posts: 117 | From PA | Registered: Aug 2008
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btmb03
Unregistered
posted
Hi brooke, I had a ton of gut issues with doxy but no increase in headaches/migraines...was also on mino for an unrelated reason years ago and didn't notice any difference either.
Macrolides have been worse for me re: migraines/headaches and sometimes I can't distinguish that from a sinus HA either. Weird.
posted
I haven't taken mino but I can verify the sun sensitivity with doxy. I have chronically burned arms and nose regardless of wearing 85 sun screen, hats, and sleeves most of the time.
Other than that. I had headaches at first but, once I got through those, the side effects haven't been bad.
-------------------- Sofi Posts: 150 | From Northern California | Registered: Jun 2009
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