I've now had 3 negative tests including a wb & my dr thinks i've got to look at other causes for my symptoms including ms.
What I can't understand is that when I was on 4 wks of doxy, I felt loads better. When I stopped I felt worse, Initially symptoms seemed to come back quite quickly & then continued to increase over the next few weeks.
As you can guess, i've been searching the web & have come across this :
I'm no medical expert, but this seems to say that ms can be treated with the same abx as lyme.
Can MS & Lyme actually be closely related? Maybe MS is triggered by Lyme?
I've looked through some old posts and similar issues have been discussed in the past.
I've got 3 more weeks doxy from my dr and have an appointment with an immunologist in 3 wks - guess I'll have to wait and see what he thinks.
Anyone have any thoughts or more info on this?
Posted by dmc (Member # 5102) on :
I was labled "MS" for 17yrs before finding a true LLMD. In fact the Doctor who did the dvd presentation "Chronic Lyme Disease: Connection to MS- Facts behind the controversy" the #5 educational material from this website: http://www.newhaven.edu/unh/lyme/
good luck
Posted by seekhelp (Member # 15067) on :
You can find hundreds of posts here on the hypothesis Lyme is MS, ALS, and endless diseases. Try the search function. There's a wealth of feedback here. Posted by bettyg (Member # 6147) on :
panda,'
what specific lab did your western blot igm and igg? ************************************************************
hope it was: igenex, mdl, fry labs, clongen, stoneybrooke or florida's lab !!
they are the most LYME DIAGNOSTIC labs we have in usa!!
also, what were your POSITIVE & IND nos.
list them for each igm and igg please ********************************************
MS AND LYME: The DVD about lyme and MS at www.unh-lyme.org may be of interest to you. It's $15, and proceeds go to support Dr. S's research. ----------------------------------------------------------- Timaca
type in ms and lyme medical topic any date leave membership no. blank; click search
read all posts/replies if none use BACK button and change topic to text; click search again; do same thing...
Posted by middlesizedpanda (Member # 20676) on :
Tests were done at the NHS Southampton Lab, Would not give the full result - even to my GP - just said it was negative. My GP demanded a copy of the results and was told it would take 3 weeks to get it sent out, refused to fax it. - Total madness, I was in her office when she rang so I know its what they said.
I know I'm going to have to send a test to the US. The problem is that the dr's here wont treat from the result anyway. At least i would know for myself. Theres only one LLMD in UK taking new patients,hes a long distance from me and VERY expensive.
If i'm getting treatment i'm prepared to go along with them for the time being.
Maybe they're right - I don't get night sweats, infact i hardly sweat at all anymore. I don't have swollen glands & I don't get bad headaches, just a strange feeling of numbness in the back of my head, bit like if you,ve just taken off a hat.
I do have bad tingling especially in my wrists & ankles. I do have extreme fatigue & muscle aches. Also I do have alot of clicking in my joints - loads of them - shoulders, elbows, hands, fingers, knees, ankles & toes - this seems to be more specific to lyme. & tinitius.
Thank you for the links, I'm going to do loads more reading up on this before I go for the next appointment.
Posted by Pinelady (Member # 18524) on :
midsize if you did not challenge on the western
blot, meaning no antibiotics before testing and off
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