posted
I've now had 3 negative tests including a wb & my dr thinks i've got to look at other causes for my symptoms including ms.
What I can't understand is that when I was on 4 wks of doxy, I felt loads better. When I stopped I felt worse, Initially symptoms seemed to come back quite quickly & then continued to increase over the next few weeks.
As you can guess, i've been searching the web & have come across this :
I'm no medical expert, but this seems to say that ms can be treated with the same abx as lyme.
Can MS & Lyme actually be closely related? Maybe MS is triggered by Lyme?
I've looked through some old posts and similar issues have been discussed in the past.
I've got 3 more weeks doxy from my dr and have an appointment with an immunologist in 3 wks - guess I'll have to wait and see what he thinks.
Anyone have any thoughts or more info on this?
Posts: 69 | From UK | Registered: Jun 2009
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
I was labled "MS" for 17yrs before finding a true LLMD. In fact the Doctor who did the dvd presentation "Chronic Lyme Disease: Connection to MS- Facts behind the controversy" the #5 educational material from this website: http://www.newhaven.edu/unh/lyme/
good luck
Posts: 2675 | From ct, usa | Registered: Jan 2004
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
You can find hundreds of posts here on the hypothesis Lyme is MS, ALS, and endless diseases. Try the search function. There's a wealth of feedback here. Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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bettyg
Unregistered
posted
panda,'
what specific lab did your western blot igm and igg? ************************************************************
hope it was: igenex, mdl, fry labs, clongen, stoneybrooke or florida's lab !!
they are the most LYME DIAGNOSTIC labs we have in usa!!
also, what were your POSITIVE & IND nos.
list them for each igm and igg please ********************************************
MS AND LYME: The DVD about lyme and MS at www.unh-lyme.org may be of interest to you. It's $15, and proceeds go to support Dr. S's research. ----------------------------------------------------------- Timaca
posted
Tests were done at the NHS Southampton Lab, Would not give the full result - even to my GP - just said it was negative. My GP demanded a copy of the results and was told it would take 3 weeks to get it sent out, refused to fax it. - Total madness, I was in her office when she rang so I know its what they said.
I know I'm going to have to send a test to the US. The problem is that the dr's here wont treat from the result anyway. At least i would know for myself. Theres only one LLMD in UK taking new patients,hes a long distance from me and VERY expensive.
If i'm getting treatment i'm prepared to go along with them for the time being.
Maybe they're right - I don't get night sweats, infact i hardly sweat at all anymore. I don't have swollen glands & I don't get bad headaches, just a strange feeling of numbness in the back of my head, bit like if you,ve just taken off a hat.
I do have bad tingling especially in my wrists & ankles. I do have extreme fatigue & muscle aches. Also I do have alot of clicking in my joints - loads of them - shoulders, elbows, hands, fingers, knees, ankles & toes - this seems to be more specific to lyme. & tinitius.
Thank you for the links, I'm going to do loads more reading up on this before I go for the next appointment.
Posts: 69 | From UK | Registered: Jun 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
midsize if you did not challenge on the western
blot, meaning no antibiotics before testing and off
for 10 days, I know I would have been neg. by
Igenex also. I did 3 months of homemade
antibiotic and had a lot of IND but enough pos to
be pos also. If you feel better on the doxy
continue. Then restest like stated if you are not
convinced. But MS is a syndrome of unknown
origin. I think I am glad I fought for a cause
and thankful Igenex was there for me.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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