go see pineladys post...it just makes me want to scream................
thanks pinelady...i couldn't figure out how to get the link
it's just soooo obvious....
Posted by randibear (Member # 11290) on :
my ex-fil has lyme. he ended up dying in a veterans hospital with dementia.
it was really late stage lyme and he never got treatment.
his family tells everyone how sad it was that he had dementia..
this great man, who served bravely and had a long distinguished military record, was reduced to this because of not getting treatment.
sad really...
and my uncle has early alzheimer's, according to his wife, a nurse, but she is adamant that is no such thing as lyme.
all around, sad...
Posted by lpkayak (Member # 5230) on :
my mom too...she suffered so at the end. her arms were falling out of the sockets and they wrapped her from the outside cuz she wouldn't have survived surgery. some of the llmds who have been around a long time told me treating her at that late stage would be inhumane.
randi-do you know about the military lyme yahoo group?
Posted by MarsyNY (Member # 7766) on :
Maybe you should give the nurse the related research from Dr. Alan McDonald on autopsied brain tissue.
It is frustrating when people don't let it in.. If Borrelia is found in even a small fraction of these autopsied brains isn't it worth investigating further?
PS. I just got home from a BBQ and had a conversation with a gal who was a living with and taking care of woman with alzheimers. The whole time I assumed it was someone in their 70's or 80's when she said 59 it was shocking to hear.
Posted by lpkayak (Member # 5230) on :
i am not very able to do much except get mad right now. if anyone else can get the info where it should go i hope they do
be sure to add your comments to the link on pineladys thread
Posted by Bugg (Member # 8095) on :
Alzheimer's Disease: Vitamin D, Curcumin May Help Clear Amyloid Plaques Article Date: 16 Jul 2009 - 5:00 PDT
UCLA scientists and colleagues from UC Riverside and the Human BioMolecular Research Institute have found that a form of vitamin D, together with a chemical found in turmeric spice called curcumin, may help stimulate the immune system to clear the brain of amyloid beta, which forms the plaques considered the hallmark of Alzheimer's disease.
The early research findings, which appear in the July issue of the Journal of Alzheimer's Disease, may lead to new approaches in preventing and treating Alzheimer's by utilizing the property of vitamin D3 - a form of vitamin D - both alone and together with natural or synthetic curcumin to boost the immune system in protecting the brain against amyloid beta.
Vitamin D3 is an essential nutrient for bone and immune system health; its main source is sunshine, and it is synthesized through the skin.
Deficiencies may occur during winter months or in those who spend a lot of time indoors, such as Alzheimer's patients.
"We hope that vitamin D3 and curcumin, both naturally occurring nutrients, may offer new preventive and treatment possibilities for Alzheimer's disease," said Dr. Milan Fiala, study author and a researcher at the David Geffen School of Medicine at UCLA and the Veterans Affairs Greater Los Angeles Healthcare System.
Using blood samples from nine Alzheimer's patients, one patient with mild cognitive impairment and three healthy control subjects, scientists isolated monocyte cells, which transform into macrophages that act as the immune system's clean-up crew, traveling through the brain and body and gobbling up waste products, including amyloid beta.
Researchers incubated the macrophages with amyloid beta, vitamin D3 and natural or synthetic curcumin.
The synthetic curcuminoid compounds were developed in the laboratory of John Cashman at the Human BioMolecular Research Institute, a nonprofit institute dedicated to research on diseases of the human brain.
Researchers found that naturally occurring curcumin was not readily absorbed, that it tended to break down quickly before it could be utilized and that its potency level was low, making it less effective than the new synthetic curcuminoids.
"We think some of the novel synthetic compounds will get around the shortcomings of curcumin and improve the therapeutic efficacy," Cashman said.
The team discovered that curcuminoids enhanced the surface binding of amyloid beta to macrophages and that vitamin D strongly stimulated the uptake and absorption of amyloid beta in macrophages in a majority of patients.
Previous research by the team demonstrated that the immune genes MGAT III and TLR-3 are associated with the immune system's ability to better ingest amyloid beta. In this earlier work, Fiala noted, it was shown that there are two types of Alzheimer's patients: Type 1 patients, who respond positively to curcuminoids, and Type II patients, who do not.
"Since vitamin D and curcumin work differently with the immune system, we may find that a combination of the two or each used alone may be more effective - depending on the individual patient," he said.
Fiala noted that this is early laboratory research and that no dosage of vitamin D or curcumin can be recommended at this point. Larger vitamin D and curcumin studies with more patients are planned.
The study was funded by the Human BioMolecular Research Institute, the Alzheimer's Association and MP Biomedicals LLC, a global life sciences and diagnostics company dedicated to Alzheimer's disease research. Fiala is a consultant for MP Biomedicals and also served in the company's speakers bureau.
Posted by lpkayak (Member # 5230) on :
that study is positive and exciting
Posted by RDaywillcome (Member # 21454) on :
I have dementia and lyme encephalopathy but yet, I'm dismissed as having other problesm. I tested positive for lyme by cdc critera, had lesions on the frontal lobe and also had problems with my spect scan.
I at times in the beginning couldn't remember how many grandchildren I had. Guess what? It was only two at the time. It finally came to me with coaxing. My mind is much better now because of treatment.
I had problems finding places that I've know over the years and also had trouble knowing which way the blinker went for left or right, and also which was the brake or gas.
I can now tell you how many grandkids I have, and which way the blinkers go, and the brake pedals. This man does NOT have alzheimers! Please somebody do something that lives in the area.
I will call if you give me the family name. I didn't catch it on the news. Thanks
Posted by blaze (Member # 16838) on :
Anybody who has been told they have early Alzheimer's needs to look into 'electrosensitivity', as they likely are living close to a cell phone or wifi tower or antenna. Listen to the audio archives below especially...
Search for towers and antennas here: www.antennasearch.com Posted by lpkayak (Member # 5230) on :
R said:
"I can now tell you how many grandkids I have, and which way the blinkers go, and the brake pedals. This man does NOT have alzheimers! Please somebody do something that lives in the area.
I will call if you give me the family name. I didn't catch it on the news. Thanks "
his name is Jay Jones and they live in Windsor CT
i sure hope they will see our comments
R-the thing about "the brake and gas" has me thinking. that hasn't happened to me...but there have been so many "elderly" accidents lately-ppl running into houses and store fronts ...it makes me wonder
for a long time i wondered about ppl who caused accidents when driving the wrong way on thruways etc...
i have experienced the getting lost thing and if i stay calm and just keep going eventually i see something familiar and get back home...but i'm on tx
i wonder if ppl w/o tx could progress to being the cause of the above type accidents
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by lpkayak: some of the llmds who have been around a long time told me treating her at that late stage would be inhumane.
My mom was not treated for Lyme due to the same reason.
Posted by lymieliveagain2007 (Member # 13936) on :
my 2002 spect scan resulted in an actual diagnosis of azheimers as well.
the dx code was clearly written at the end of the report which describes the damage shown on the scan. I was only 32 years old at the time. I was scared to death I had no hope of recovery.
the similarities between my lyme infected brain and alzheimers were boggling to my doctors.
my symptoms improve a lot with iv rocephin when relapse. I had a 5 year remission after aggressive treatment and tens of thousands of dollars.
my pcp office has stated many times I am the worst case of lyme they have ever seen.
unfortunately lyme being the great imitator makes ourhealth history "complicated"
I am one of the very lucky ones who has the full support of all my doctors and therapists.
Posted by Heleneh (Member # 21207) on :
My husband was diagnosed with early onset Alzheimer's by MRI the end of 2007 and I have low blood counts. In the last two months we have found he has chronic lyme as I do. It took so long to figure out what was wrong, after watching Under our Skin, I asked the doctor to run a lyme test. When he was positive I asked to be checked and the test was a definite positive for both of us. He is now on iv rocephin. Before the diagnosis he was on supplements and it has slowed it down a great deal. Is there anything else a person can do to help their husband with this diagnosis? He is still very functional. We just started the Rife machine too. Thanks for any ideas.
Posted by lpkayak (Member # 5230) on :
are you both seeing llmds? thats the first thing to do-and educate yourself-start with ilads.org
its very complicated-you really need a doc that knows whats/he's doing
Posted by lymieliveagain2007 (Member # 13936) on :
my llmd is Dr R of NY he did a tremendous job educating me and faxing an individal prorocol which my pcp followed.
Im sure this is why i regained a lot of function and had a long remission. i can recognize relapse and my doctors do what works for me. I am saving the money to see Dr R again as soon as possible.
My pcp started iv rocephin at my request and reviewing DR R website. My doctor WANTS to learn from my case to actually help people. They genuinely want me to feel better.
Posted by Heleneh (Member # 21207) on :
Yes, we are seeing a LLMD. We may get a second opinion. It has been a rough with going to doctors and not getting a diagnosis. I figure we must have lyme at least 6-7 years.
My husband is on IV rocephin. He has been on it for about 4 weeks, though I don't notice much improvement. How long does it take to notice as improvement if it happens on this IV?
Posted by Pinelady (Member # 18524) on :
Heleneh it may take a long while to get the
improvements you look for. While most get sicker in
the beginning. You can get more info doing a search