Feeling like crap. I've been getting weird episodes of partial numbness. It's freakin me out as I'm already worried about the risk of MS. I've been getting it in my legs, butt and other area down there. It seems that I'm super sensitive to pressure. Like if I sit my butt and other parts will go numb, if I lay on my side my side and leg will go numb... etc... Usually it subsides after changing position, but sometimes it lingers.
It freaks me out. What is going on?
Posted by Pinelady (Member # 18524) on :
kareamber I had this worse before treatment. Now it is getting better. You feel like your body is not yours anymore. I think it is caused by damaged cells/neurons. Keep electrolytes going helps.
Posted by dmc (Member # 5102) on :
Could be a spinal issue. If I sit "cross legged" my legs go numb as soon as I shift another area.
Doctor & PT thought positional.
MRI revealed bulging disc L5S1 so certain positions cause the nerve to be compressed.
BTW worried about MS? then get the DVD no. 5 from University of New Haven's educational videos. You'll stop worrier so much. http://www.newhaven.edu/unh/lyme/ Posted by Bugg (Member # 8095) on :
attacking my inflammation helped with this...
sorry you're dealing with this....
Posted by glm1111 (Member # 16556) on :
Check out the parasites/worm connection to Lyme disease.
My first clue that something was wrong with me was my whole leg went numb, followed by my arm and face.
It didn't go completely numb, so I could use these limbs but it was scary!
I only get it every once in a while now and has mostly gone away when I treated Bart.
Posted by Brussels (Member # 13480) on :
It was one of my most persistent symptoms. For me, I believe, it was borrelia in the 'nerves'. It was not scary, but for me, a nuisance as it was a bad feeling.
It went out for good, I suspect it is some inflamation of the nerves or so. I had it simultaneously to muscle pains. Neural therapy dealt well with it.
Now I would use photons to get rid of it again (neural therapy through photons). Easy and effective !
I'm pretty sure acupuncture too can help but I guess, once the critters are active, the problem will come and go (?).
Posted by IckyTicky (Member # 21466) on :
This is a problem I've been having as well. It's like a painful numb/burning experience in my right leg.
It goes from my butt cheek all the way down to my foot, and the top of my foot also. It's really painful and uncomfortable and gets me in a grumpy mood.
Mine comes and goes, and seems to be from inflammation of the nerves. There are days I can only sit for a minute at a time until I have to get up and get walking to make it feel better.
Laying down was really the only thing I could do.
I had this happen two months ago, then it subsided somewhat and came back again within a couple weeks. Then went away again after a week. I feel like I have it now just not so bad that I feel the need to get up and move.
You aren't alone in the feeling. It's really crummy.
Posted by Aimee (Member # 20946) on :
Count me in too. This wasn't one of my original symptoms. It has really kicked in strong lately though - I am on week 4 of abx. My legs have very strong pins and needles sensations - not completely numb, but they tingle alot.
I just had a 6 hour car ride to visit family out of state and that was challening with this symptom.
I have begun to wonder if maybe I am infected with bart too - have you been tested for any co-infections?
Also considered this to be due to inflammation as well - trying to stick to the inflammation diet but am not being all that successful this week on vacation. Guess I need to get back to it. Have you tried that?
Always helps me to know I'm not alone in all these new and not so wonderful symptoms.
Aimee
Posted by DeniseNM (Member # 11182) on :
I get this, too, and it feels like my left leg is out of my control. If I sit or lay or stay in one position for any length of time, I have to stand slowly and let my leg "re-boot" or get reconnected to my brain before I can walk again. And then I still stagger around for awhile sometimes.
I'm also having trouble with my mouth not saying what I'm thinking. It's driving me nuts and making me very grumpy!
It's a good thing I don't have to interact with too many people at my job, given how grumpy and drunk-sounding I've been.
In my experience with these types of symptoms, they do come and go. They told me 11 years ago that I have relapsing-remitting MS (which means it comes and goes), based on MRI. The first set of symptoms went away after a couple of months. Now my MRI shows more lesions and my symptoms are worse.
I take Copaxone shots for MS, and am hoping it can slow things and/or help my body to heal while I try and get goign on the Lyme treatment. Having a bad time with that, too.
I keep hoping that it'll get better or I'll feel better at some point.