posted
Feeling like crap. I've been getting weird episodes of partial numbness. It's freakin me out as I'm already worried about the risk of MS. I've been getting it in my legs, butt and other area down there. It seems that I'm super sensitive to pressure. Like if I sit my butt and other parts will go numb, if I lay on my side my side and leg will go numb... etc... Usually it subsides after changing position, but sometimes it lingers.
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
kareamber I had this worse before treatment. Now it is getting better. You feel like your body is not yours anymore. I think it is caused by damaged cells/neurons. Keep electrolytes going helps.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Could be a spinal issue. If I sit "cross legged" my legs go numb as soon as I shift another area.
Doctor & PT thought positional.
MRI revealed bulging disc L5S1 so certain positions cause the nerve to be compressed.
BTW worried about MS? then get the DVD no. 5 from University of New Haven's educational videos. You'll stop worrier so much. http://www.newhaven.edu/unh/lyme/Posts: 2675 | From ct, usa | Registered: Jan 2004
| IP: Logged |
Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
attacking my inflammation helped with this...
sorry you're dealing with this....
Posts: 1155 | From Southeast | Registered: Oct 2005
| IP: Logged |
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Check out the parasites/worm connection to Lyme disease.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
posted
My first clue that something was wrong with me was my whole leg went numb, followed by my arm and face.
It didn't go completely numb, so I could use these limbs but it was scary!
I only get it every once in a while now and has mostly gone away when I treated Bart.
Posts: 146 | From California | Registered: May 2008
| IP: Logged |
Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
It was one of my most persistent symptoms. For me, I believe, it was borrelia in the 'nerves'. It was not scary, but for me, a nuisance as it was a bad feeling.
It went out for good, I suspect it is some inflamation of the nerves or so. I had it simultaneously to muscle pains. Neural therapy dealt well with it.
Now I would use photons to get rid of it again (neural therapy through photons). Easy and effective !
I'm pretty sure acupuncture too can help but I guess, once the critters are active, the problem will come and go (?).
Posts: 6200 | From Brussels | Registered: Oct 2007
| IP: Logged |
IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
This is a problem I've been having as well. It's like a painful numb/burning experience in my right leg.
It goes from my butt cheek all the way down to my foot, and the top of my foot also. It's really painful and uncomfortable and gets me in a grumpy mood.
Mine comes and goes, and seems to be from inflammation of the nerves. There are days I can only sit for a minute at a time until I have to get up and get walking to make it feel better.
Laying down was really the only thing I could do.
I had this happen two months ago, then it subsided somewhat and came back again within a couple weeks. Then went away again after a week. I feel like I have it now just not so bad that I feel the need to get up and move.
You aren't alone in the feeling. It's really crummy.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
| IP: Logged |
posted
Count me in too. This wasn't one of my original symptoms. It has really kicked in strong lately though - I am on week 4 of abx. My legs have very strong pins and needles sensations - not completely numb, but they tingle alot.
I just had a 6 hour car ride to visit family out of state and that was challening with this symptom.
I have begun to wonder if maybe I am infected with bart too - have you been tested for any co-infections?
Also considered this to be due to inflammation as well - trying to stick to the inflammation diet but am not being all that successful this week on vacation. Guess I need to get back to it. Have you tried that?
Always helps me to know I'm not alone in all these new and not so wonderful symptoms.
Aimee
Posts: 239 | From Virginia | Registered: Jun 2009
| IP: Logged |
posted
I get this, too, and it feels like my left leg is out of my control. If I sit or lay or stay in one position for any length of time, I have to stand slowly and let my leg "re-boot" or get reconnected to my brain before I can walk again. And then I still stagger around for awhile sometimes.
I'm also having trouble with my mouth not saying what I'm thinking. It's driving me nuts and making me very grumpy!
It's a good thing I don't have to interact with too many people at my job, given how grumpy and drunk-sounding I've been.
In my experience with these types of symptoms, they do come and go. They told me 11 years ago that I have relapsing-remitting MS (which means it comes and goes), based on MRI. The first set of symptoms went away after a couple of months. Now my MRI shows more lesions and my symptoms are worse.
I take Copaxone shots for MS, and am hoping it can slow things and/or help my body to heal while I try and get goign on the Lyme treatment. Having a bad time with that, too.
I keep hoping that it'll get better or I'll feel better at some point.
-------------------- dx: MS in 1998 2007 - Lyme suspected 2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS gall bladder out 7/09 Ceftin, Zith, Septra LDN Acyclovir Monolaurin, DHEA, Pregnonelon, Curcumin Posts: 243 | From New Mexico | Registered: Feb 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic