12 days. She had been feeling really good until this morning. Nausea and some pain lower in
the GI has returned. I can't stand this anymore!
Good for 10 days and now this again! I was
really hoping it was the H Pylori causing her
problems but it doesnt appear that way.
Could this be still lyme or parasites or yeast
I don't know what else to do! All of a sudden
in the past 10 minutes her head feels a little
dizzy, her nose is running and she is starting
to feel like crap again. UGGGG!
Deb G
Posted by sixgoofykids (Member # 11141) on :
Do you think it's symptoms returning, or do you think it's possible she caught a bug? Sometimes we assume it's Lyme and it ends up being the flu.
It could be parasites, Lyme, bartonella, yeast ... really anything. GI symptoms were very bad for me. I did several rounds of Humaworm. Enula also helped for parasites.
I eat a lot of fermented foods to help with digestion and to build up good intestinal flora. Also, since she's on abx, she should be taking lots of probiotics. I needed VSL#3 when I took abx because it has 450 billion microorganisms.
I'm sorry she's feeling so bad. Keep plugging away, she can get better.
Posted by Deb133 (Member # 18544) on :
Thanks Six,
She appears to just keep flaring...I was just
hoping the H Pylori was what was giving her
the problem but I think we have to keep digging
around for more answers.
Thanks for responding
Deb G
Posted by sonee123 (Member # 18632) on :
Deb133,
I have had the WORST of the WORST GI issues back before i started treatment in March.
I was diagnosed with H Pylori as well. Does your daughter have lyme or any co-infections?
Heres what i went through
I have severe neuro MS symptoms and all would flare everytime i ate.
When i ate Extreme bloating. Belching Gas Stomach making rigid noises I was not digesting food i think my stomach would not empty. Dirreah Constipation My stomach was so closely related with lyme symptoms.
I was Rx for Prevpac. Contains Amoxy, biaxin and prevacid. I think a week later i started to feel the kick. I didn't take the prepac as prescribed i took one dose a day and took for a month and not all of my symptoms were gone but to a point that i could eat again.
I had lost 20lbs in 3 months cause of that! I seriously think if i have lyme and co it's that causing my GI issues and now i was tested negative for h pylori!
However i still have stomach issues. Constipation dirrea, gas bloating BUT nothing like what i had before NOTHING!
Now i have my MS symptoms on rage.
I think it's all related.
Taking those meds will help her trust me! I almost died not eating!
Posted by lymeinhell (Member # 4622) on :
quote:Could this be still lyme or parasites or yeast
I don't know what else to do! All of a sudden
in the past 10 minutes her head feels a little
dizzy, her nose is running and she is starting
to feel like crap again
I'd say YEAST (but I'm not doctor) . She still staying carb free? No sugars?? This was my EXACT syndrome every time I had dinner. It only cleared up when I was put on Diflucan for a few months. It's not always the Lyme.
Hope she feels better.
Posted by Deb133 (Member # 18544) on :
Thanks Guys!
We go back to the LLMD next Wednesday and I am hoping he will treat for yeast as a precaution.
Heck..I wouldnt mind if he treated for parasites at some point as well..maybe when she is on
a school break like Thanksgiving.
She has NOT been staying as carb free and sugar free as I would like...15 years old...need I say more.. but is usually very dilgient about everything else.
It seemed like the flagyl, amox and nexium kicked in almost immediately...but now I am wondering
if that was just co-incidence as here we are again
with the pain, the gurgling, the major nausea, no
diahrrea but bloating and a little gassy. I will
take everybodys advice that responded..and we
also can't rule out Bartonella although she was pretty symptom free for about 3 months over the
summer. I am still wondering if the tetanus/pertussis vaccine didnt jump start all this.
Looks as though there is no treatment for this? It is interesting. The symptoms mimic Lyme and Co's. I would be interested to know if anyone has treated this successfully.
Posted by StopTheItchPlz (Member # 23266) on :
I have a question for those of you who have H. Pylori?
Did you find out through having an upper endoscopy done?
Posted by Deb133 (Member # 18544) on :
My daughter had a blood test. Some people have had an endoscopy but you don't have to.
After treating the infection for two weeks with Flagyl, Amoxy and Nexium she is better but
not perfect so there is more going on...now we are
back to treating for Bartonella.
Good luck,
Deb G
Posted by timaca (Member # 6911) on :
jenny76~ Yes, the symptoms for enterovirus are very similar to lyme, that is why it is so important to get tested for several different viruses, in addition to lyme and treat what is most obviously wrong.
Oxymatrine (a chinese herb) is what is used to treat enterovirus. I *think* I'll be able to direct you to a website in the future with that info. For now: http://www.equilibranthealth.com/product.php
White Tiger also makes a oxymatrine product.
I know three people (me included) who have benefited from oxymatrine.
Best, Timaca
Posted by StopTheItchPlz (Member # 23266) on :
Thanks for the info Deb. I am always curious as to what other people are told regarding detection of H pylori. I have been told by my GI doc that a blood test was not accurate for detecting H pylori and that he would need to scope me again(3rd scope). I didn't do it, mainly for cost reasons.
I really hope your daughter gets relief. Good luck to you both! Posted by massman (Member # 18116) on :
Deb there are some good natural health pros close to your area.
Have you considered using them ?
Posted by Pinelady (Member # 18524) on :
Is she on Nystatin or Diflucan?
I take N. 4 times a day and Creon for the bowels.
I have not had any problems other than abdominal
lymph. In fact since I started treatment I got rid
of diarrhea I had for over a year. Hope she finds
some relief. Also maybe switching to gluten free
for a while to see if it helps.
Posted by Deb133 (Member # 18544) on :
Massman - is there anybody you could suggest as
far as a natural health pro?
Pinelady - she is not on Nystatin or Dif although
I did talk to LLMD last Wed at length concerning
yeast. He didn't feel right now that there was
any problem where that was concerned. I also
asked about parasites and he said it certainly
wouldn't hurt to do a parasite cleanse so I think over Christmas break we may try that.
I would lOVE for her to ease up on the Gluten...easier
said than done for a 15 year old teen. The
reason he is suspecting Bartonella is she has had
red stretch mark looking lines since we have
started treating for Lyme last January..
As far as the blood test checking for H Pylori..I
read several places where this is one of the 4 ways to check for H Pylori..hmm so I don't know.
Anyway..as always thanks for the much needed advice...
Deb G
Posted by daphnesmom (Member # 22267) on :
Hi, Deb. My heart is breaking for you right now. I bet this is the yeast beast. Since starting with my new LLMD, I am on the VSL#3 that six has mentioned, along with a very strict diet. Yeast was a problem for me and one of the reasons I switched Drs. I think the VSL is starting to make a difference. Maybe you can look into that.
It never ****ing ends.
I am sorry. I know what you have been through.
Posted by richedie (Member # 14689) on :
You don't need to be carb free, that is very unhealthy. I eat fruit, oatmeal, buckwheat, red potatoes most days of the week and have not had yeast issues.
What probiotics does she take? I like Body Biotics and Jarrow Dophilus EPS.
Posted by daphnesmom (Member # 22267) on :
Let me clarify "strict". I have oatmeal with blueberries everyday for breakfast, eat some fruit...not much of the really sugary stuff, and have yams, or occasionally some pototoes and sometimes some sourdough toast.
Well ok, I confess, the other day I had 7 Tator Tots.
Posted by Deb133 (Member # 18544) on :
Thanks daphnesmaon and Richedie...acutally I have been doing alot of reading on Jarrow Dophilus and
I believe there is a place that sells it right here in my town...right now she takes a product
by Nutrition NOW called Pro-Biotics Acidophilus which is a blend and has about 14 billion good
bacteria per capsule. I bought it in a local
health food store. She takes two a day. Perhaps
this hasnt been enough.
Posted by djf2005 (Member # 11449) on :
VSL #3
225 billion per cap
Posted by daphnesmom (Member # 22267) on :
Deb...maybe what she is taking isn't enough. She has been on alot of abx.
Make sure you ask the dr about the VSL. Strong stuff...I had to ramp it up, and only take one cap a day mixed in yogurt.
Posted by Deb133 (Member # 18544) on :
ok thanks I will....we go back in 2 weeks...her stomach was great in school today and she hasn't taken any antibiotics since last evening...I let
her have a teeny break to see how she would feel
as she was quite nauseous last night after
taking them. I'm wondering if the HH capsules she just started Friday night has anything to
do with this right now. Because for almost 2
weeks she was feeling pretty good...also
he upped her Amoxy to 3000 mg...and added in Tindamax.
Deb
Posted by richedie (Member # 14689) on :
You have to be strict on refined things like white bread, garbage french fries(although tasty!), sugar, white rice, etc. She should try to stay with as intact whole grains as possible, not refined or processed. If I do bread once in a while, I do sprouted grain. Does she have Babesia? That caused me nausea as do other TBIs.
Careful with probiotics. I saw a study where they tested 10 popular probiotics and only a few had what they claim! Body Biotics was one and I think Jarrow EPS was conidered a good one.
Posted by WildCondor (Member # 434) on :
Where is the Biaxin with the Amoxicillin? It is usually FLagyl + Tetracycline +bismuth OR Amoxicillin + Biaxin + prevacid
Posted by Deb133 (Member # 18544) on :
Thanks richedie...going to pick up some tomorrow....WC he was treating her with Flagyl, Amoxicillin and Nexium for about 3 weeks for the H Pylori...
He just switched the Flagyl to Tindamax and increased the Amoxicillin and then wanted her to try HH for the suspected Bartonella
She was bit again 3 weeks ago and I am wondering if this is why he upped the Amoxy from 1000 mg to 3000 mg? Since he did that...her bite mark went from
red to almost completely gone in a few days. Maybe that was
just co-incidence? She now has very few lyme
symptoms left...an occassional knee pain but thats
been about it...no flareups in weeks...have my
fingers crossed...
Deb
Posted by randibear (Member # 11290) on :
did she have any burning type sensations in her lower abdomen? also i had scalding diahhrea, was very weak. boy was i sick.
that was a couple of years ago.
i sure hope she gets better. seems sometimes the treatment is worse than the disease huh?
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