How bad is/was your herx while using tindamax? This stuff is killing me. I was fine for the first week and now my back is killing me, spine, old symptoms back.
The doctor said that this is supposed to happen and try and push through.
Anyone have the same reaction with tindamax? Posted by sixgoofykids (Member # 11141) on :
I took it one week per month for four months during my flare week. I couldn't handle it anymore so they took me off it.
Posted by Lymetoo (Member # 743) on :
Well... with flagyl!!!! Which is basically the same thing!!
Go easy on it!
HUGS!!!!!
Posted by Wonko (Member # 18318) on :
I was to pulse Tindamax, one week on/one week off. I made it through 2 pulses, but it caused a major Herx/flare/relapse. I stopped taking it about 4 weeks ago and am still not recovered.
I put it back on the shelf for now. I know I need to keep treating to get better, but I'm not willing to take that big a set back now. I have recently resumed full time work and the Tindamax nearly cost me that status.
I may try it again while on holiday vacation, but if I do, it'll be in a baby-sized dose!
Posted by sammy (Member # 13952) on :
I take Tindamax 3days per week. First week was killer. Had terrible back pain, abd pain, head pressure, nausea, dizziness, fatigue, felt bad fluey all over.
Each week when I start it again I still flare but not as bad as that first week. Hopefully it will get easier with time.
Posted by Hoosiers51 (Member # 15759) on :
I feel I'm plateauing with Lyme treatment, so I'm hoping to take this soon.
Posted by Imaginit (Member # 20399) on :
I take it 2 days on the weekends and five days off. The first weekend was ok. The second weekend I ended up sleeping for 15 hours. Hope it gets better as I go along.
Posted by Blackstone (Member # 9453) on :
Not so bad for me. Tindamax is my "go to", nomatter what antibiotics I'm on, I always throw in said cyst buster for good measure. I was up 1 gram daily, divided dose.
Posted by jkmom (Member # 14004) on :
My daughter is just finishing her first week on it. She feels a little worse than she did before, but it isn't as bad as I thought it would be, so far.
Posted by Tish (Member # 18029) on :
Wow! I'm so amazed at the varied responses here. I could not tolerate Flagyl years ago, before I knew I had Lyme. Had to stop it - deathly ill.
My current doc wanted three days of Tindemax every two weeks for three rounds. I just finished the the first three day course and did quite well with it. Maybe that's a bad thing... It actually made me feel better after an initial short herx. I took it with Zithromax for 6 days. The Zithro gave me diarrhea.
I have been using the Cowden Protocol up until this point (5 months). I felt I could not handle antibiotics until now. Also, I added Spiro by Raintree into the mix for two weeks just before the Tindemax. I feel the herbals must be working or I would have had a much more severe reaction to the antibiotics. I am back on the Spiro now that I am done with the antibiotics. Spiro has worked excellently for me. I will do it for the two months that they recommend with the periods of Tindemax cycling mixed in. After that, probably back to Cowden herbs again or any others that look promising. My goal is to constantly switch herbals and to add antibiotics as I can afford and tolerate them.
Tish
Posted by IckyTicky (Member # 21466) on :
Hmm... I'm trying to gauge how I'm going to do on this.. and finding out that most people pulse this med?
I just started Tindamax yesterday... 250mg 2xdaily and I have not been told to pulse at all... just every single day 500mg. So far all I have is general ickyness and some stomach upset. Then again, today is only day two.
I've been on mono abx therapy for 21 months and I've had LD for at least 22 years.
Posted by seekhelp (Member # 15067) on :
Why on Earth monotherapy for 21 months? Do you have issues handling meds? Just curious. That seems quite far out if an ILADS doc treats.
Posted by IckyTicky (Member # 21466) on :
seekhelp... yes, I have a very high bacterial load (I've had LD for at least 22 years but likely born with it (32 yrs ago). I'm also positive for Mycoplasma and RMSF. Bart symptoms as well. Yes, I have a wonderful ILADS doc. 2 yrs ago I was dying and now I am functional and able to be a mom and wife. Posted by Tracy9 (Member # 7521) on :
My son has been on Tindamax on weekends for about 2 months. I feel bad, because I never know what affects what. He seems the same physically, but I never think of these things if he is particularly crabby or having tantrums at 14 or oppositional or whatever.
I guess it is just impossible to know. The one thing I do know is when he got better, it was very obvious. I can't wait to get to that point again. It was short lived, as he became allergic to Rocephin, but it was a miraculous two weeks.
Posted by pj1954 (Member # 11722) on :
if you can push thru the herx the benefits will be worth it !
first time I did flagyl and tindamax it was a great med for me I saw tons of improvement, my last round I herxed for almost 30 of the 45 days I was on it.
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