janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
How bad is/was your herx while using tindamax? This stuff is killing me. I was fine for the first week and now my back is killing me, spine, old symptoms back.
The doctor said that this is supposed to happen and try and push through.
Anyone have the same reaction with tindamax?
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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posted
I was to pulse Tindamax, one week on/one week off. I made it through 2 pulses, but it caused a major Herx/flare/relapse. I stopped taking it about 4 weeks ago and am still not recovered.
I put it back on the shelf for now. I know I need to keep treating to get better, but I'm not willing to take that big a set back now. I have recently resumed full time work and the Tindamax nearly cost me that status.
I may try it again while on holiday vacation, but if I do, it'll be in a baby-sized dose!
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I take Tindamax 3days per week. First week was killer. Had terrible back pain, abd pain, head pressure, nausea, dizziness, fatigue, felt bad fluey all over.
Each week when I start it again I still flare but not as bad as that first week. Hopefully it will get easier with time.
Posts: 5237 | From here | Registered: Nov 2007
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
I feel I'm plateauing with Lyme treatment, so I'm hoping to take this soon.
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
I take it 2 days on the weekends and five days off. The first weekend was ok. The second weekend I ended up sleeping for 15 hours. Hope it gets better as I go along.
Posts: 123 | From Montana | Registered: May 2009
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posted
Not so bad for me. Tindamax is my "go to", nomatter what antibiotics I'm on, I always throw in said cyst buster for good measure. I was up 1 gram daily, divided dose.
Posts: 690 | From East coast, USA | Registered: Jun 2006
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posted
My daughter is just finishing her first week on it. She feels a little worse than she did before, but it isn't as bad as I thought it would be, so far.
Posts: 984 | From US | Registered: Dec 2007
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posted
Wow! I'm so amazed at the varied responses here. I could not tolerate Flagyl years ago, before I knew I had Lyme. Had to stop it - deathly ill.
My current doc wanted three days of Tindemax every two weeks for three rounds. I just finished the the first three day course and did quite well with it. Maybe that's a bad thing... It actually made me feel better after an initial short herx. I took it with Zithromax for 6 days. The Zithro gave me diarrhea.
I have been using the Cowden Protocol up until this point (5 months). I felt I could not handle antibiotics until now. Also, I added Spiro by Raintree into the mix for two weeks just before the Tindemax. I feel the herbals must be working or I would have had a much more severe reaction to the antibiotics. I am back on the Spiro now that I am done with the antibiotics. Spiro has worked excellently for me. I will do it for the two months that they recommend with the periods of Tindemax cycling mixed in. After that, probably back to Cowden herbs again or any others that look promising. My goal is to constantly switch herbals and to add antibiotics as I can afford and tolerate them.
Tish
Posts: 31 | From TX | Registered: Nov 2008
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Hmm... I'm trying to gauge how I'm going to do on this.. and finding out that most people pulse this med?
I just started Tindamax yesterday... 250mg 2xdaily and I have not been told to pulse at all... just every single day 500mg. So far all I have is general ickyness and some stomach upset. Then again, today is only day two.
I've been on mono abx therapy for 21 months and I've had LD for at least 22 years.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Why on Earth monotherapy for 21 months? Do you have issues handling meds? Just curious. That seems quite far out if an ILADS doc treats.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
seekhelp... yes, I have a very high bacterial load (I've had LD for at least 22 years but likely born with it (32 yrs ago). I'm also positive for Mycoplasma and RMSF. Bart symptoms as well. Yes, I have a wonderful ILADS doc. 2 yrs ago I was dying and now I am functional and able to be a mom and wife.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
My son has been on Tindamax on weekends for about 2 months. I feel bad, because I never know what affects what. He seems the same physically, but I never think of these things if he is particularly crabby or having tantrums at 14 or oppositional or whatever.
I guess it is just impossible to know. The one thing I do know is when he got better, it was very obvious. I can't wait to get to that point again. It was short lived, as he became allergic to Rocephin, but it was a miraculous two weeks.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
if you can push thru the herx the benefits will be worth it !
first time I did flagyl and tindamax it was a great med for me I saw tons of improvement, my last round I herxed for almost 30 of the 45 days I was on it.
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
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