Can anyone shed light on which meds can help with the symptoms of neuro lyme? Posted by sixgoofykids (Member # 11141) on :
I would suggest reading the Dr. B guidelines at www.ilads.org
Most of us with chronic Lyme have neuro symptoms and have used long term abx to clear it.
Posted by TF (Member # 14183) on :
Yes, all the meds that treat lyme will treat the neuro symptoms. It is just part of having lyme disease.
There are no special meds for neuro symptoms. But, if neuro symptoms are extremely severe, then the doc may want to put that patient on IV therapy. See top of p. 21 in Burrascano guidelines where he says this.
On p. 28 he recommends vitamin B to help clear neurological symptoms.
You can do a search of the document on-line to find every instance of the word "neurological" and see what he recommends that way.
Posted by Sick Tick (Member # 23003) on :
Per my MD, neuro symptoms can also be caused by damage to the nerve cells, and not necessarily ongoing infection. Many have been helped with those symptoms by taking Neurontin.
Posted by kitkat32 (Member # 9682) on :
Are psychological symptoms considered neuro symptoms? I know that might seem like a silly question..but....
I didn't know if they were considered two different aspects.
Janice-which sx's are you experiencing? I know during my first round of treatment Bicillan cleared my stabbing pains and fogginess.
I think a good LLMD combines your abx to hit all aspects.
kit
Posted by janice victorov (Member # 22937) on :
Kitkat, I was dealing with some stabbing in my ribs. That's now stopped and have some brain fog that was gone until now.
Is bicillan Iv? Also, if so, do you know if it's covered by insurance? Thanks, Janice
Posted by coltman (Member # 21272) on :
Drugs which have good CNS penetration.
Posted by kitkat32 (Member # 9682) on :
Hi Janice,
Bicillan is an IM injection. Mine was covered by insurance.
We taught my husband how to give it to me. It really isn't that bad.
I really felt a made a breakthrough with those injections. I have a new script for them now. If my current treatment doesn't work I am switching back to Bicillan.
Best of luck...kit
Posted by coltman (Member # 21272) on :
quote:Originally posted by kitkat32:
Bicillan is an IM injection. Mine was covered by insurance.
BTW bicillin does not cross BBB -certainly not in doses any llmd uses. Only very high dose penicillin does (which is actually borderline neurotoxic) - the doses are one the order or 5-10 miu /day combined with probenicid. - Bicillin LA can never reach that cause its delayed release (very low concentration over long time)
so its not really good drug of choice for neuro lyme. IV like tygecylcine should be better choice
Posted by kitkat32 (Member # 9682) on :
I did not know that it didn't cross the BBB.
However, I made great improvement while using it.
kit
Posted by David Miller (Member # 21583) on :
High doses of doxycycline are supposed to cross the BBB fairly well (toward the upper end of the 200-600 mg/day range). Minocycline is still better, but has additional side effects.
To that end, taking the maximum dose you can tolerate at once gives the best kill kinetics; A shorter, higher, spike gets more abx into the immuno privleged areas and does more good than a steady but lower blood level.
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