janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
Can anyone shed light on which meds can help with the symptoms of neuro lyme?
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
I would suggest reading the Dr. B guidelines at www.ilads.org
Most of us with chronic Lyme have neuro symptoms and have used long term abx to clear it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Yes, all the meds that treat lyme will treat the neuro symptoms. It is just part of having lyme disease.
There are no special meds for neuro symptoms. But, if neuro symptoms are extremely severe, then the doc may want to put that patient on IV therapy. See top of p. 21 in Burrascano guidelines where he says this.
On p. 28 he recommends vitamin B to help clear neurological symptoms.
You can do a search of the document on-line to find every instance of the word "neurological" and see what he recommends that way.
Posts: 9931 | From Maryland | Registered: Dec 2007
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posted
Per my MD, neuro symptoms can also be caused by damage to the nerve cells, and not necessarily ongoing infection. Many have been helped with those symptoms by taking Neurontin.
Posts: 283 | From where the ticks are! | Registered: Oct 2009
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Bicillan is an IM injection. Mine was covered by insurance.
We taught my husband how to give it to me. It really isn't that bad.
I really felt a made a breakthrough with those injections. I have a new script for them now. If my current treatment doesn't work I am switching back to Bicillan.
Best of luck...kit
Posts: 655 | From Pennsylvania | Registered: Jul 2006
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Bicillan is an IM injection. Mine was covered by insurance.
BTW bicillin does not cross BBB -certainly not in doses any llmd uses. Only very high dose penicillin does (which is actually borderline neurotoxic) - the doses are one the order or 5-10 miu /day combined with probenicid. - Bicillin LA can never reach that cause its delayed release (very low concentration over long time)
so its not really good drug of choice for neuro lyme. IV like tygecylcine should be better choice
Posts: 856 | From MA | Registered: Jul 2009
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posted
High doses of doxycycline are supposed to cross the BBB fairly well (toward the upper end of the 200-600 mg/day range). Minocycline is still better, but has additional side effects.
To that end, taking the maximum dose you can tolerate at once gives the best kill kinetics; A shorter, higher, spike gets more abx into the immuno privleged areas and does more good than a steady but lower blood level.
Posts: 98 | From Maine | Registered: Jul 2009
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