i am experiencing toes turning purple and going numb... happening more often. whats going on?
Posted by Keebler (Member # 12673) on :
- Ohhh. What does your doctor say about this?
Have they assessed you for Raynauld's?
Do you have a LLMD? Some lyme patients to experience this and it often gets better with treatment. -
Posted by sutherngrl (Member # 16270) on :
My mother has "raynaulds" and that is what her fingers do exactly. Can happen to your fingers or your toes.
Posted by lymemomtb (Member # 23993) on :
My toes have never turned purple but numbness... had it all the time as did my close friend with Lyme. Definitely follow up on the purple part though, suggestions above sound right.
Posted by Lymetoo (Member # 743) on :
Yep. Could be Raynaud's.
Posted by Pinelady (Member # 18524) on :
Could be Lyme. With Raynaud's. My daughter just
showed me her hot red burning toes. I said hey I
remember those. I had them over a year ago. Now go
take your medicine. I saw a show the other day on a
truck driver who suffered over a year and almost
lost his feet. He had a blood infection.
Posted by jen ratzlaff (Member # 23496) on :
thanks for your replys. i have appt. with llmd
not till april 8th. I will call my doctor
Posted by terri3boys (Member # 12993) on :
I have SEVERE Raynaud's that seems to be getting worse. My fingers and toes are affected. My fingers get so white, then they can turn any color from red to purple to even BLACK! The doctors have seen it in person! What IS the treatment for this?
My doctors all know I suffer from this, however nobody seems to be treating it. I guess they think it will improve on it's own? I'm on Toprol for heart issues and I've been told that the only real "semi-treatment" is some other type of vascular diaoltor med or something similar to that.
Apparently, none of my doctors want to put me on a med like that for multiple reasons ------- other health issues, etc. I don't know, but SOMETHING MUST BE DONE!
I have a call into my neurologist and cardiologist right now. What med do some of YOU take to help with your Raynaud's?
Thanks so much for any suggestions!
terri3boys
Posted by jen ratzlaff (Member # 23496) on :
I should have also said it is affecting my hands.
when i did see my doc. in december to request to
be put back on doxi. i explained to him about my
fingers and toes. am i suppose to call him again
or should i wait until i see my llmd in april?
it sounds like alot of lymies "test" normal for
other diseases... but symptons say different.
I have no insurance so am somewhat hesitant of
going in if my tests would come back normal...
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Pinelady: [QB] Could be Lyme. With Raynaud's.
OH yes...indeed. I have both.
terri.. I found out by accident that my cortef was helping the Raynaud's.... a lot.
Not sure you want to get on another med like that...it's long term. I'm on a very low dosage for adrenal insufficiency.
Posted by Siciliano (Member # 15920) on :
Hi, Jen, I was given this link by a friend, I have not checked it out so I hope it is okay. Maybe it will give you some good info.
![[hi]](graemlins/hi.gif)