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»	LymeNet Flash » Questions and Discussion » Medical Questions » purple

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Author

Topic: purple

jen ratzlaff
Member
Member # 23496

posted

i am experiencing toes turning purple and going numb... happening more often. whats going on?

Posts: 11 | From Ft. Wayne,IN | Registered: Dec 2009 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
Ohhh. What does your doctor say about this?

Have they assessed you for Raynauld's?

Do you have a LLMD? Some lyme patients to experience this and it often gets better with treatment.
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

My mother has "raynaulds" and that is what her fingers do exactly. Can happen to your fingers or your toes.

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

lymemomtb
Member
Member # 23993

posted

My toes have never turned purple but numbness... had it all the time as did my close friend with Lyme. Definitely follow up on the purple part though, suggestions above sound right.

Posts: 24 | From Connecticut | Registered: Jan 2010 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Yep. Could be Raynaud's.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

Could be Lyme. With Raynaud's. My daughter just

showed me her hot red burning toes. I said hey I

remember those. I had them over a year ago. Now go

take your medicine. I saw a show the other day on a

truck driver who suffered over a year and almost

lost his feet. He had a blood infection.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

jen ratzlaff
Member
Member # 23496

posted

thanks for your replys. i have appt. with llmd

not till april 8th. I will call my doctor

Posts: 11 | From Ft. Wayne,IN | Registered: Dec 2009 | IP: Logged |

terri3boys
LymeNet Contributor
Member # 12993

posted

I have SEVERE Raynaud's that seems to be getting worse. My fingers and toes are affected. My fingers get so white, then they can turn any color from red to purple to even BLACK! The doctors have seen it in person! What IS the treatment for this?

My doctors all know I suffer from this, however nobody seems to be treating it. I guess they think it will improve on it's own? I'm on Toprol for heart issues and I've been told that the only real "semi-treatment" is some other type of vascular diaoltor med or something similar to that.

Apparently, none of my doctors want to put me on a med like that for multiple reasons ------- other health issues, etc. I don't know, but SOMETHING MUST BE DONE!

I have a call into my neurologist and cardiologist right now. What med do some of YOU take to help with your Raynaud's?

Thanks so much for any suggestions!

terri3boys

Posts: 268 | From Texas | Registered: Aug 2007 | IP: Logged |

jen ratzlaff
Member
Member # 23496

posted

I should have also said it is affecting my hands.

when i did see my doc. in december to request to

be put back on doxi. i explained to him about my

fingers and toes. am i suppose to call him again

or should i wait until i see my llmd in april?

it sounds like alot of lymies "test" normal for

other diseases... but symptons say different.

I have no insurance so am somewhat hesitant of

going in if my tests would come back normal...

Posts: 11 | From Ft. Wayne,IN | Registered: Dec 2009 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

quote:
Originally posted by Pinelady:
[QB] Could be Lyme. With Raynaud's.

OH yes...indeed. I have both.

terri.. I found out by accident that my cortef was helping the Raynaud's.... a lot.

Not sure you want to get on another med like that...it's long term. I'm on a very low dosage for adrenal insufficiency.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

Siciliano
Frequent Contributor (1K+ posts)
Member # 15920

posted

Hi, Jen, I was given this link by a friend, I have not checked it out so I hope it is okay. Maybe it will give you some good info. [hi]

http://en.wikipedia.org/wiki/Raynaud%27s_disease

--------------------
I'm sorry but I am no longer accepting any private messages due to my own battle with lyme.

Posts: 3897 | From New Hampshire | Registered: Jun 2008 | IP: Logged |

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