I looked over the entire site. Has anyone been for any services at the NYU Lyme Neuroborreliosis Program?
Posted by joalo (Member # 12752) on :
Up for input.
Posted by seibertneurolyme (Member # 6416) on :
Hubby saw Dr Y a couple of years ago before he got the funding for this new program. It was close to the worst doc experience he has had.
If you compare the site you reference to the Columbia University site you will notice a big difference -- the site you reference makes no mention of coinfections!!!!!!!!!!!!!!!!!!!
Dr Y is primarily looking for patients who qualify for IV IgG treatment to further his research studies in my opinion. And regardless of what the website says, he does not believe in chronic Lyme.
Hubby had a SPECT done at Columbia but did not go through the full neuropsych testing there.
Bea Seibert
Posted by carly (Member # 14810) on :
That is actually where I went to be told my symptoms are "not at all a typical presentation of lyme disease", when I brought up that possibility.
Posted by sutherngrl (Member # 16270) on :
Sounds like its more about what the doctor can gain and not the patient.
Posted by MariaA (Member # 9128) on :
so= does this place have a way to get IVIG treatment to patients without a gazillion dollars to spend? That might be worth it for some people even if they doctors are other wise "ducks".