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»	LymeNet Flash » Questions and Discussion » Medical Questions » lyme nb program at NYU

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Topic: lyme nb program at NYU

sickpuppy
LymeNet Contributor
Member # 23846

posted

http://lymedisease.med.nyu.edu/

I looked over the entire site.
Has anyone been for any services at the NYU Lyme Neuroborreliosis Program?

Posts: 702 | From North Eastern USA | Registered: Dec 2009 | IP: Logged |

joalo
Frequent Contributor (1K+ posts)
Member # 12752

posted

Up for input.

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Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006.

Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007 | IP: Logged |

seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

posted

Hubby saw Dr Y a couple of years ago before he got the funding for this new program. It was close to the worst doc experience he has had.

If you compare the site you reference to the Columbia University site you will notice a big difference -- the site you reference makes no mention of coinfections!!!!!!!!!!!!!!!!!!!

http://www.cumc.columbia.edu/dept/pi/nyspi/LymeDisease/index.html

Dr Y is primarily looking for patients who qualify for IV IgG treatment to further his research studies in my opinion. And regardless of what the website says, he does not believe in chronic Lyme.

Hubby had a SPECT done at Columbia but did not go through the full neuropsych testing there.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004 | IP: Logged |

carly
LymeNet Contributor
Member # 14810

posted

That is actually where I went to be told my symptoms are "not at all a typical presentation of lyme disease", when I brought up that possibility.

Posts: 797 | From New York | Registered: Feb 2008 | IP: Logged |

sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270

posted

Sounds like its more about what the doctor can gain and not the patient.

Posts: 4035 | From Mississippi | Registered: Jul 2008 | IP: Logged |

MariaA
Frequent Contributor (1K+ posts)
Member # 9128

posted

so= does this place have a way to get IVIG treatment to patients without a gazillion dollars to spend? That might be worth it for some people even if they doctors are other wise "ducks".

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Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
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Posts: 2552 | From San Francisco | Registered: Apr 2006 | IP: Logged |

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