Looking for any ideas at all - from simple to not-so-simple... just need relief.
This is my one remaining symptom, and I am desperate for help.
Thanks.
Posted by IckyTicky (Member # 21466) on :
Chiropractor that specializes in Upper Cervical technique. Read "What Time Tuesday?"
Posted by Keebler (Member # 12673) on :
- In addition to that or finding someone trained in cranial-sacral as in the UPLEDGER INSTITUTE's method (through Google) . . .
Corydalis is a herb that really helps decrease my nerve pain. Magnesium, curcumin and fish oil help but the corydalis helps lifts the pain better at night to help me sleep better.
For night-time use, corydalis is in HerbSom from www.hepapro.com
There are some other sources of it without the sleep formula - I've just never used it during the day. I would try 1stChineseHerbs or Kaylx.com
PubMed has many medical abstracts on the value of Corydalis to decrease pain and it's not harmful to the liver as Tylenol is or to the kidneys as Ibuprofen can be.
I wonder if a light wand would help - either over the area or as the base connector points of the nerves.
Oh . . . I just remembered about a medical mushroom that has been written as helping the nerves integrity of "MS" patients - even to help some nerve tissue heal.
Lion's Mane (scientific name starts with an "H" )
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Posted by cactus (Member # 7347) on :
Thanks to you both.
IckyTicky (have always loved your name), I am looking into the book now - and happy to hear that the author found help.
Keebler, I will check out both of your sources for corydalis. Bonus that is not harmful to the liver or kidneys - makes it all the more appealing.
Do you have any thoughts on which type of light wand to order?
Thanks again.
Posted by Keebler (Member # 12673) on :
-
LIGHTWORKS, I think . . . is the name of the wand that Carol in PA has used. Sparkle, too, has used this.
You can send her a PM: Carol in PA Member # 5338
You can search for Lightworks - or for a member here:
Thanks, Keebler.
Posted by Lymetoo (Member # 743) on :
Cortef .. low dose
Posted by lpkayak (Member # 5230) on :
hmmm-i didn't realize cortef might help this
neurontin really helps me-but mine is mild and intermitten
also-this last time i was eating bad and not sleeping when it came on. when i started doing things right again it seemed to make a difference.
Posted by Lymetoo (Member # 743) on :
I found out it was helping when I tried to get off it... WHAM.. bigtime nerve pain in my head and the Raynaud's problem went nuts.
Back to the cortef .. no problems. ( exept mild occasional problems )
Posted by cactus (Member # 7347) on :
Hmmmm... I take low dose cortef - I wonder if adjusting the dose would help?
Or if I need to do a stress dose during these episodes?
Thanks for all the ideas, and I'm always up for more thoughts on this!
Posted by lpkayak (Member # 5230) on :
thanks for info lymetoo---now if i can just keep it in my brain for when i need it
Posted by Lymetoo (Member # 743) on :
I hear ya, kayak!
cactus.. How much do you take now?
Posted by cactus (Member # 7347) on :
I take 15 mg in the am, and 5 mg with lunch. For Addison's Disease (one of my Lyme souvenirs).
Also - small dose of florinef (also for Addison's) and levothyroid in am (for Hashimoto's Thyroiditis, yet another gift from the tick).
I never knew that there could be a connection here, so this really helps.
Posted by kellyjk4 (Member # 19731) on :
cactus,
the only thing that helps when I have a TN attack is a heat pack applied directly over that side of my face.
I use a pack I bought at the store - I think it's filled with rice or something like that.
Sometimes I have to apply it several times, but it works for me.
Good luck!
Posted by TF (Member # 14183) on :
What worked for me was Benadryl. Cranial sacral therapy did not help me. Neither did neurontin.
It is excruciating and unbearable, that's for sure.
Hope you find something to help.
Posted by opus2828 (Member # 15407) on :
It is awful and I am getting a lot of this past month - I think cold weather also makes it worse.
Heat really helps me - either a heat pack or hot air blowing on my face. That's how I drive - with the windows open and the heat on full blast aimed at my face.
I find that prescription strength Advil takes the edge off the pain.
And rubbing some Vicks Vapo-Rub on my face seems to help. My eye burns a little with this but it is temporary.
I have heard some people use Capsacin for this but I haven't tried that yet.
Good luck finding relief - it is one of the worst symptoms!
Posted by daphnesmom (Member # 22267) on :
Hi, Trigeminal Neuralgia was my very first symptom in 2004. It's god awful, so I sympathize.
I tried everything including some of the meds mentioned here. Nothing worked except low dose Lamictal. It sent the nerve pain back to the brain. It worked wonders.
Posted by Jessica (Member # 23405) on :
You may try acupuncture. There are points that would help. I know that my mentor treats trigeminal neuralgia.
I am an acupuncture intern and acupuncture helps me with detox, headaches, and stomach pain.