cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Anyone have suggestions on relief from this?
It is excruciating.
Looking for any ideas at all - from simple to not-so-simple... just need relief.
This is my one remaining symptom, and I am desperate for help.
Thanks.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Chiropractor that specializes in Upper Cervical technique. Read "What Time Tuesday?"
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- In addition to that or finding someone trained in cranial-sacral as in the UPLEDGER INSTITUTE's method (through Google) . . .
Corydalis is a herb that really helps decrease my nerve pain. Magnesium, curcumin and fish oil help but the corydalis helps lifts the pain better at night to help me sleep better.
For night-time use, corydalis is in HerbSom from www.hepapro.com
There are some other sources of it without the sleep formula - I've just never used it during the day. I would try 1stChineseHerbs or Kaylx.com
PubMed has many medical abstracts on the value of Corydalis to decrease pain and it's not harmful to the liver as Tylenol is or to the kidneys as Ibuprofen can be.
I wonder if a light wand would help - either over the area or as the base connector points of the nerves.
Oh . . . I just remembered about a medical mushroom that has been written as helping the nerves integrity of "MS" patients - even to help some nerve tissue heal.
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Thanks to you both.
IckyTicky (have always loved your name), I am looking into the book now - and happy to hear that the author found help.
Keebler, I will check out both of your sources for corydalis. Bonus that is not harmful to the liver or kidneys - makes it all the more appealing.
Do you have any thoughts on which type of light wand to order?
Thanks again.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
-
LIGHTWORKS, I think . . . is the name of the wand that Carol in PA has used. Sparkle, too, has used this.
You can send her a PM: Carol in PA Member # 5338
You can search for Lightworks - or for a member here:
cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Thanks, Keebler.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
I found out it was helping when I tried to get off it... WHAM.. bigtime nerve pain in my head and the Raynaud's problem went nuts.
Back to the cortef .. no problems. ( exept mild occasional problems )
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Hmmmm... I take low dose cortef - I wonder if adjusting the dose would help?
Or if I need to do a stress dose during these episodes?
Thanks for all the ideas, and I'm always up for more thoughts on this!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
thanks for info lymetoo---now if i can just keep it in my brain for when i need it
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
I take 15 mg in the am, and 5 mg with lunch. For Addison's Disease (one of my Lyme souvenirs).
Also - small dose of florinef (also for Addison's) and levothyroid in am (for Hashimoto's Thyroiditis, yet another gift from the tick).
I never knew that there could be a connection here, so this really helps.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
It is awful and I am getting a lot of this past month - I think cold weather also makes it worse.
Heat really helps me - either a heat pack or hot air blowing on my face. That's how I drive - with the windows open and the heat on full blast aimed at my face.
I find that prescription strength Advil takes the edge off the pain.
And rubbing some Vicks Vapo-Rub on my face seems to help. My eye burns a little with this but it is temporary.
I have heard some people use Capsacin for this but I haven't tried that yet.
Good luck finding relief - it is one of the worst symptoms!
Posts: 581 | From CT | Registered: May 2008
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posted
Hi, Trigeminal Neuralgia was my very first symptom in 2004. It's god awful, so I sympathize.
I tried everything including some of the meds mentioned here. Nothing worked except low dose Lamictal. It sent the nerve pain back to the brain. It worked wonders.
Posts: 79 | From Northeast US | Registered: Sep 2009
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posted
You may try acupuncture. There are points that would help. I know that my mentor treats trigeminal neuralgia.
I am an acupuncture intern and acupuncture helps me with detox, headaches, and stomach pain.
Posts: 19 | From Rockville, MD | Registered: Nov 2009
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