This is topic LLMD/MD who dx's and tx's KPU and Pyroluria in NY, NJ, or CT area? in forum Medical Questions at LymeNet Flash.


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Posted by Rumigirl (Member # 15091) on :
 
{Not sure if this should be in seeking a dr instead).

I have an LLMD, but he doesn't work with KPU, Pyroluria, and methylation pathway glitches---and I know that I have 2 genetic

methylation pathway glitches, and may have more issues. It could be an non-LLMD, but would be much better if it were an LLMD, as that complicates the picture a lot.

I am having lots of problems tolerating various abx and meds, and my LLMD gets exasperated with me and doesn't understand,

which is very frustrating for me, too! I don't chose to have these issues! Thank you.
 
Posted by f13girl (Member # 23844) on :
 
I think I also have methylation issues (I'm chemical sensitive) and have crashed hard after first abx experience (now housebound/not functioning where i was before). How did you test for your methylation pathway issues?
 
Posted by Larkspur (Member # 5131) on :
 
My LLMD is treating KPU (I just started) but I'm in PA (LLMD is about an hour outside of Philadelphia)

You can PM me if you want more info
 
Posted by lightparfait (Member # 22022) on :
 
I have a ND (not LLMD) in NJ who treats KPU.
PM me if that's of interest.
 
Posted by sixgoofykids (Member # 11141) on :
 
I am moving this to seeking doctor. If you are reading this in Medical, there is a link at the upper left hand side of the thread that will take you to the seeking doctor thread so you can post. Thanks!
 


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