LymeNet Flash: LLMD/MD who dx's and tx's KPU and Pyroluria in NY, NJ, or CT area?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » LLMD/MD who dx's and tx's KPU and Pyroluria in NY, NJ, or CT area?

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Topic: LLMD/MD who dx's and tx's KPU and Pyroluria in NY, NJ, or CT area?

Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

posted

{Not sure if this should be in seeking a dr instead).

I have an LLMD, but he doesn't work with KPU, Pyroluria, and methylation pathway glitches---and I know that I have 2 genetic

methylation pathway glitches, and may have more issues. It could be an non-LLMD, but would be much better if it were an LLMD, as that complicates the picture a lot.

I am having lots of problems tolerating various abx and meds, and my LLMD gets exasperated with me and doesn't understand,

which is very frustrating for me, too! I don't chose to have these issues! Thank you.

Posts: 3792 | From around | Registered: Mar 2008 | IP: Logged |

f13girl
LymeNet Contributor
Member # 23844

posted

I think I also have methylation issues (I'm chemical sensitive) and have crashed hard after first abx experience (now housebound/not functioning where i was before). How did you test for your methylation pathway issues?

Posts: 200 | From New England | Registered: Dec 2009 | IP: Logged |

Larkspur
LymeNet Contributor
Member # 5131

posted

My LLMD is treating KPU (I just started) but I'm in PA (LLMD is about an hour outside of Philadelphia)

You can PM me if you want more info

--------------------
"We must be willing to get rid of
the life we've planned, so as to have the life that is waiting for us" - e.m. forster

Posts: 921 | From PA | Registered: Jan 2004 | IP: Logged |

lightparfait
Frequent Contributor (1K+ posts)
Member # 22022

posted

I have a ND (not LLMD) in NJ who treats KPU.
PM me if that's of interest.

Posts: 1009 | From NJ | Registered: Aug 2009 | IP: Logged |

sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141

posted

I am moving this to seeking doctor. If you are reading this in Medical, there is a link at the upper left hand side of the thread that will take you to the seeking doctor thread so you can post. Thanks!

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007 | IP: Logged |

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