I am so confused. I know I sound like a broken record here, but please help if you can. This is lengthy, so don't bother if you don't have time.
I am still treating a tick bite I got at the end of May 2009. Started abx 5 weeks later. Had a couple of herx that included severe depression & anxiety.
After one month on abx, felt completely symptom free for nearly 2 months.
New symptoms started that included extreme body burning and stomach and chest burning. LLMD said it was a herx and to stay on meds. It has all been downhill from there.
The past three months my hips hurt, soles of feet are sore, ribs are sore and body is on fire.
Ended up in hospital in Dec. from stomach problems. Went off abx, but on day 15, flu symptoms returned. I got scared and went back on abx. Could the flu symptoms have been my immune system trying to kick in?
When I re-started doxy, I had what I thought was a small herx.
Then, 10 days ago I started treating bart because thought symptoms could be that. LabCorp test was negative. I did ok the first week at 300mg rifampin (once a day) & 500mg Ceftin (twice a day). I am no longer sure if symptoms are herx, or abx. I ached a little for a few days. Now, my stomach is burning more than ever and so is my body.
I have also been battling yeast for several months.
I feel like my body is screaming....no more!
At this point, should I tough it out for at least a month to see if rifampin improves anything or does my body need a break from abx? My main symptoms are sore hips and feet and horrific body burning. Could this be toxins that my body has from the abx?
I am sorry for being so lengthy. I know I need to call my LLMD, but he is so busy I hate to bother him. He is pretty open to whatever I decide to do.
Thank you for all your help and understanding.
Posted by Karen Mc (Member # 23354) on :
Jennie, My heart goes out to you. I am so sorry you are having so much trouble.
Mind you,this is just my opinion so please listen to others more qualified than me.
I personally believe in listening to your body...that is why I kept pushing forward to find out what was wrong with me last year.
I was FINALLY diag. April 2009.
But,(Again just MY opinion) It sounds like you are STILL battleing with Lyme and/or co infections.
I personally have struggled with having to take so many abx. and we (LLMD) have had to change my combinations several times (no 1 size fits all)
It sounds like the 5 weeks abx helped but obviously wasn't enough.
Please if possible try to continue treament as I feel like it would benefit you in the long run.
I still am having a lot of symptoms etc (which includes the burning you have, which started during treament) but I have no doubt I'm still in a better place than I would have been without treatment.
Have you been on Bactrim? I seemed to tolerate that quite well.
Also I just started Rifamipin a little over 2 weeks ago.. and I must say I didnt like it..still not thrilled but I chose to stick it out and side effects, herx or what ever you want to call them have seemed to finally level out some.
Bottom line, follow your heart and instincts. It's good you have a LLMD to help guide you.
Good luck and God Bless. I'll be praying for you.
Karen
P.S. I have bart also, even though my lab corp test was positive we all know your neg test doesn't mean it is actually negative.
I DIDNT need a positive result to convince me I just knew from the MASSIVE symptoms.
It sounds like you are really having a time with yeast...perhaps you could try going off abx until you get yeast under control and then trying again?? Just a thought
Posted by map1131 (Member # 2022) on :
jennie, what detox protocols are you using daily? You really haven't been at the abx that long.
True some people can handle much better than others. But I would guess your body needs alot of support with the abx usage.
Many with the yeast problems have had to completely change their diets. Completely.
Pam
Posted by jennie46 (Member # 20953) on :
Karen MC....
Just to clarify, I have been on abx for 7 months. I started abx treatment 5 weeks after the bite.
Thanks for your input. I really appreciate it!
Posted by jennie46 (Member # 20953) on :
quote:Originally posted by map1131: jennie, what detox protocols are you using daily? You really haven't been at the abx that long.
True some people can handle much better than others. But I would guess your body needs alot of support with the abx usage.
Many with the yeast problems have had to completely change their diets. Completely.
Pam
I have been on abx for 7 months.
Daily detoxing includes green tea and lemon water. I really need suggestions as to what I could add for detox.
[ 02-02-2010, 11:13 AM: Message edited by: jennie46 ]
Posted by txgirl09 (Member # 21612) on :
jennie, I've been in the same boat as you. I stopped all abx for a week to see how I would feel. Its so hard to tell what are side effects and what are symptoms.
I think some times our bodies just need a break.
Have you thought about going to herbals?
Posted by sixgoofykids (Member # 11141) on :
Sore feet can be from a sluggish lymphatic system. Red Root tincture is something Buhner recommends for that. Start slowly. Maybe lymphatic drainage massages or rebounding would help, too. Move around a bit each day even if it's only walking.
I would also implement other detox measures. Water, coffee enemas, whey protein, burbur, parsley, etc.
I would treat that yeast. Many of the symptoms could be from yeast.
Posted by Lymetoo (Member # 743) on :
Definitely treat the yeast and make sure your diet is clean .. no sugar, fruit, juices, white foods.
Sure sounds like bart to me, but I'll defer to others on that.
Which abx started the burning?
Posted by jennie46 (Member # 20953) on :
quote:Originally posted by txgirl09: jennie, I've been in the same boat as you. I stopped all abx for a week to see how I would feel. Its so hard to tell what are side effects and what are symptoms.
I think some times our bodies just need a break.
Have you thought about going to herbals?
I have not really thought about herbals. I am seriously thinking about getting a rife machine.
Posted by jennie46 (Member # 20953) on :
quote:Originally posted by sixgoofykids: Sore feet can be from a sluggish lymphatic system. Red Root tincture is something Buhner recommends for that. Start slowly. Maybe lymphatic drainage massages or rebounding would help, too. Move around a bit each day even if it's only walking.
I would also implement other detox measures. Water, coffee enemas, whey protein, burbur, parsley, etc.
I would treat that yeast. Many of the symptoms could be from yeast.
My LLMD will only prescribe 10 Diflucan pills at a time. I can't really find anyting that works.
Posted by jennie46 (Member # 20953) on :
quote:Originally posted by Lymetoo: Definitely treat the yeast and make sure your diet is clean .. no sugar, fruit, juices, white foods.
Sure sounds like bart to me, but I'll defer to others on that.
Which abx started the burning?
I am trying on the diet. I just lose so much weight trying to eat no white foods. I plan on starting oil pulling in a couple of days after I find the right oil in hopes of helping the yeast.
Burning started on Ceftin, but has continued even after switching to other abx. I am now back on Ceftin along with rifampin. I will give the rifampin a few more weeks and see how I do.
Posted by Lymetoo (Member # 743) on :
How about a prescription for Nystatin? A good preventative, but also kills yeast.
Posted by Vermont_Lymie (Member # 9780) on :
Taking freeze dried garlic after meals has helped me to keep yeast at bay; also NOW vitamins has a good anti-yeast combination with oregano and caprylic acid that helps.
Ask your doctor for liquid nystatin, which I don't actually swallow, just swish it around if necessary. But none of these anti-yeast items would be necessary for me without all the times I eat ice cream and sugar - sticking to the anti-yeast diet alone would be enough!
If you must give up the rifampin, perhaps you should keep taking ceftin longer? Or combine with other abx like bicillin? Just some thoughts as you need to discuss this with your doctor.
Posted by lymeinhell (Member # 4622) on :
How much milk thistle are you taking?
Rifampin and Diflucan (which BTW conflict with each other) are both extremely hard on the liver.
Could be yeast, which you know about. Oil of oregano, capryllic acid, grapefruit seed extract, all are herbal and tough on yeast.
But at this point you're probably toxic and need some help getting the garbage out too. Milk thistle is a must. Infrared Sauna... Foot detox patches (www.podipatch.com), as suggested lymphatic massage, rebounding (mini-trampoline - they rock! www.needak.com) Posted by map1131 (Member # 2022) on :
jennie, rife is no easy road dear. If you have a toxic body, in fact rife can add to your misery.
Killing toxic matter(s) with rife and you not doing heavy duty detoxing is not fun. Been there done that.
Pam
Posted by jennie46 (Member # 20953) on :
quote:Originally posted by lymeinhell: How much milk thistle are you taking?
Rifampin and Diflucan (which BTW conflict with each other) are both extremely hard on the liver.
Could be yeast, which you know about. Oil of oregano, capryllic acid, grapefruit seed extract, all are herbal and tough on yeast.
But at this point you're probably toxic and need some help getting the garbage out too. Milk thistle is a must. Infrared Sauna... Foot detox patches (www.podipatch.com), as suggested lymphatic massage, rebounding (mini-trampoline - they rock! www.needak.com)
I take 175mg milk thistle, as suggested in Dr. B guidelines.
I will buy capryllic acid...what dosage should I take? Would coconut oil work better?
Posted by lymeinhell (Member # 4622) on :
I'd try upping the milk thistle - as I was just reminded by my dr, you can't take too much milk thistle. Your body takes what it needs and gets rid of the rest.
Shoot - I don't know recommended on capryllic acid. I do oil of oregano and grapefruit seed extract and diflucan (as needed). I'm sure the other yeast sufferers will chime in.
Also, perhaps try getting a detox foot bath. Was just reminded of them lately by gmb's post from the clinic.
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