[ 02-21-2010, 11:35 AM: Message edited by: NeuroEcclectic ]
Posted by dmc (Member # 5102) on :
Wonderful news.
It has been discussed before. Do a search (above under "post a poll" button)
Posted by JR (Member # 16898) on :
The LymeNet Terms & Conditions contain the following: "You agree not to post the last name, or the first name, of any person that treats Lyme disease. Instead, please use the first initial of the last name only, with the state, but not city. For example, Dr. G. in WV. This person's contact information should not be displayed on LymeNet. However, you may PM or email this information. This is to protect those that treat Lyme and the Lyme community."
Posted by NeuroEcclectic (Member # 17783) on :
I am very sorry JR.
I thought that it wouldn't apply due to the fact
that it his protocol is highly published. It
will not happen again.
John.
Posted by jenny76 (Member # 18205) on :
John, Great news!! How did it help your symptoms? Meaning which ones disappeared and after only three days??
Good for you!! :-)
Posted by thomasx (Member # 13431) on :
John, I am also feeling dramatic improvement in neuro symptoms from Diflucan. First real progress I feel. And I felt a difference within days of starting.
Posted by Keebler (Member # 12673) on :
- Links to authors' published works (books, articles, etc.) can be posted. When posting excerpts, credit must be given to the author.
I don't know of any more recent but if you have links, that is helpful for education. These are now five years old.
Eleven patients with neuro-borreliosis had been treated with 200 mg fluconazole daily for 25 days after an unsuccessful therapy with antibiotics.
At the end of treatment eight patients had no borreliosis symptoms and remained free of relapse in a follow-up examination one year later.
In the remaining four patients, symptoms were considerably improved. At the end of therapy immune reactivity (IgM+) disappeared in three patients.
Since borrelia spp. are almost exclusively localised intracellular, they may depend on certain metabolites of their eucaryotic host cell. Inhibition of P450 and other cytochromes by fluconazole may incapacitate Borrelia upon longterm exposure.
===================
The interview below describes a more detailed process from that in the abstract above.
Clinical effects of fluconazole in patients with neuroborreliosis.
Abstract (2004) and an interview with author (2005).
-
Posted by Geneal (Member # 10375) on :
I've done the diflucan protocol for a long time.
Over a year in combination with babesia and/or Lyme treatment.
My LLMD has asked me which medicine has made the biggest difference for me.
My answer. Diflucan.
Hugs,
Geneal
Posted by NeuroEcclectic (Member # 17783) on :
OMG_Thank you for letting me (us) know Geneal.
I was wondering if it will keep working. It has been 3mo.
Are you well, sx free or are you sx less now?
Posted by Geneal (Member # 10375) on :
I was in remission from May of last year till December.
I had a self induced relapse in December.
My LLMD feels the Lyme is in remission.
I am just battling babesia now.......again.
It was a slow, but gradual process.
Clearer thinking. Ability to find words and say them correctly came too.
Decrease in swallowing problems as well as brain fog lifting.
I am doing so much better now than I was prior to treatment.
Much better after about 6 months of diflucan.
I never had liver enzyme issues on it and I do 200mg for 60 days.
I take two weeks off and repeat.
Just my personal experience though.
Hang in there. If you feel better that is all that counts.
I was able to return to working part time last January.
Full time from May to present.
I have fatigue issues and some mild insomnia issues from babesia treatment,
But as a Speech Pathologist, the ability to speak well and clearly
Was the best thing that could have ever happened for me.
That and being a better Mom.
Hugs,
Geneal
Posted by Alana (Member # 14077) on :
Hi everyone
Neuro, you and I seem to have the same post going! Maybe the mods can combine them so that we're all on the same thread? What do you think?
I am so glad to hear of your improvement, along with Thomas' and Geneal's. Thanks to you both for sharing your experiences. My daughter improved in DAYS also.
Geneal, I am happy to hear you were able to do 60 days straight of diflucan without abnormal liver tests! I am amazed at how the diflucan helped you. I am so happy (yet still skeptical)with my daughter's improvement, but I do worry about liver issues. The main thing is that she is getting bloodwork on a regular basis and her tests so far are normal.
DMC, have you tried diflucan? If so, what has your experience been?
Keebler, thanks as always for posting the links/research.
JR, lighten up. A gentle PM to neuro telling him/her about the rules/regs of lymenet would have been much more appropriate, especially since you had nothing germane to add to this thread.
Jenny, the most noticeable improvement for my daughter has been her decreased fatigue, decreased need for sleep/rest, increased alertness/cognition. She is not "healthy" by a long shot, but her improvement has been dramatic and happened within a few days, as opposed to weeks and months, like so many other things she's tried, which ultimately failed. She has been sick for almost 4 years, and done everything from amantadine to doxycycline to rocephin to valcyte.
What I don't understand is since Dr. S's study was published in 04, why haven't more of us heard about it? We begged for diflucan b/c of yeast infections and FINALLY got a prescription.
Why haven't our LLMDs prescribed it for patients who have been on abx therapy for so long? Most of them seem to know many, many protocols. How come very few (if any) know about this one? Just wondering.
Dr. S's study subjects were patients with LD who failed abx treatment. Do you all think that maybe the abx killed the spirochetes, but b/c of all the yeast created by the abx, little to no improvement was seen until diflucan was came in to finish off the yeast? Just a thought.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by Alana:
Dr. S's study subjects were patients with LD who failed abx treatment. Do you all think that maybe the abx killed the spirochetes, but b/c of all the yeast created by the abx, little to no improvement was seen until diflucan was came in to finish off the yeast? Just a thought.
That's what I think.
PS.. This is a rather well-known protocol .. not one that has been hiding.
Posted by Alana (Member # 14077) on :
Yeah lymetutu, I'm thinking that too.
I don't think Dr. S's protocol has been hiding, After years of research on LD and cos, I've read about many docs and protocols. But his name/study didn't pop up until recently when diflucan came into the picture for us. I haven't heard anything about diflucan from any LLMD....good or bad.
Posted by Keebler (Member # 12673) on :
- Good point about candida. From the interview:
" . . .smaller spectrum penicillins . . ." are also used. It's not just Diflucan. -
Posted by Alana (Member # 14077) on :
FYI...I have asked the moderators if it's possible to combine my thread with NeuroEcclectic's.
We are posting similar info and seeking the same input/comments.
If this is OK with Neuro, it's OK with me.
Posted by Lymetoo (Member # 743) on :
That's surprising about the Diflucan not being menitoned. Most LLMD's use it from time to time for yeast.
Posted by Keebler (Member # 12673) on :
- Here's the link for anyone who wants to pop right on over to that thread:
Topic: Schardt protocol (diflucan/pen)--anyone doing or done this? Success? Thoughts?
Posted by Alana -
Posted by TerryK (Member # 8552) on :
Before I knew I had lyme disesae I was treated for a year with a medication very similar to diflucan. I had quite a bit of improvement but after going off I relapsed within a year. I had not had any abx at that point. I avoided abx because they made me so sick.
My LLMD mentioned diflucan to me in my first appointment with him 4 years ago. I want to give it a try again since after so long on abx I seem to be having fungal problems.
Thanks for reminding us about not posting doctors names JR. I think it is helpful to include the request in the thread where it happened so that others are reminded as well. I had to be reminded when I first started posting at lymenet.
Terry
Posted by Lymetoo (Member # 743) on :
I posted this on the other thread:
quote: -------------------------------------------------------------------------------- Originally posted by Alana:
Wondering if all the abx people take actually do kill the spirochete but because the abx causes yeast and symptoms from that, people don't notice.
I've been preaching this for years here. Especially when you are nearing the end of treatment, you need to get serious about treating yeast. Many try to ignore the FACT that yeast and Lyme have VERY similar symptoms.
So... How do you know when you're "cured" of lyme if you have bigtime yeast??? You WON'T know!! You will think you're still ill from lyme ... and MAYBE YOU'RE NOT!!!
OK.. off my little soapbox for now!!
Posted by thomasx (Member # 13431) on :
Lymetoo... does the yeast "disease" have a formal name?
Posted by TerryK (Member # 8552) on :
thomasx - it is called Candidiasis
Posted by Geneal (Member # 10375) on :
My LLMD checks yeast levels every visit.
I was a 1 when I started the diflucan protocol.
Not free from yeast, but not swimming in it.
I agree though that yeast is a major contributer to our issues.
Even off antibiotics I had yeast issues.
However, due to too much weight loss, I had to stop the diet for a while.
It is kind of depressing to think that this is an issue (yeast)
That I will probably have to deal with now for the rest of my life.
I was so looking forward to a guilt free banana split!
Hugs,
Geneal
Posted by bncrump (Member # 20374) on :
Lymetoo ~ I have to say that I am starting to think the same thing. I probably had yeast issues before I even starting treating for lyme but...I did 2 months IV Rocephin and then did biaxin, mino and plaquenil. The yeast got so bad that I had to stop all meds.
Now on candida elimination diet and doing Humaworm (I read that it is good for yeast too) and taking occasional Diflucan. My insurance is fighting the Diflucan, I can only get 2 pills a month.
In just 2 weeks of adding the Humawork and taking some extra probiotics, I can already feel a difference. I am amazed to be honest. Quite a few of the symptoms that I "thought" were my lyme disease are leaving. I definitely think that my lyme is better than I thought and the problems I am having are yeast related.
Don't get me wrong, I don't think I am in remission by any means but I don't think I am as sick as I thought. My main goal over the next few months is YEAST ELIMINATION (hopefully will get approval for more diflucan) and then I will go back on antibiotics.
It has truly been amazing to see the difference only a week has made. I hope that more people pay attention to this...it is a HUGE factor in my opinion!
I am so thankful for this forum...I would have NEVER known about the yeast issue had I not been reading here. THANKS!
Posted by thomasx (Member # 13431) on :
Hey BNCrump... Fluconazole is relatively cheap. If insurance won't pay for it, perhaps you can. $32 for 30 200mg? 100mg, for whatever reason, is more expensive than 200mg.
[ 02-22-2010, 08:30 PM: Message edited by: thomasx ]
Posted by Alana (Member # 14077) on :
Terry, WOW...your LLMD mentioned diflucan 4 years ago?? He must be one good doc. Good luck with giving it a go. Hope you'll see the same improvement others here have had.
Geneal, how does your doc check yeast levels? Blood test? Are you (or did you) follow Dr. S's protocol of rotating the diflucan with penicillin? Sounds like you're well on your way to eliminating the yeast. Heck, I'd just go for that banana split and enjoy it!
bncrump, I'm so very thankful for this forum too. Just can't believe how much I've learned here. I really do think yeast is much more significant than most of us think, especially when you consider the amount of abx we take. How could someone NOT have yeast??
I think that b/c we are all aware of the importance of probiotics and nystatin to control yeast and take these things diligently, perhaps we are overly confident that yeast is being controlled. Yet, it isn't until you start the heavy-duty yeast med diflucan that people see improvement.
I also think that parasites play a much bigger part in this disease too, which needs to be addressed. I think we'll do the humaworm thing too at some point. Glad to hear you are seeing improvement. It is amazing to see such drastic improvement in a matter of days (and with no herx). Especially after hearing so often that we have to give things weeks/months to work, herxing is a good sign, etc. That gets old after several years.
Sorry to hear about your insurance co fighting the diflucan! Two pills a MONTH? That's ridiculous. But like Thomas said, diflucan (generic: fluconazole) isn't too expensive. I'd shop around to see who offers the best price out of pocket.
![[Smile]](smile.gif)
![[hi]](graemlins/hi.gif)
![[Big Grin]](biggrin.gif)