This is topic crazy alcohol reaction..anyone else? in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/91420

Posted by needanswers (Member # 19745) on :
 
So last night I drank a half of a beer and this

morning my head felt like I drank 6. Also during

the half of beer last night, I thought I was going

to fall asleep...I mean my eyes were so heavy I

thought I could have passed out. Anyone else

experience this? Thanks.
 
Posted by canefan17 (Member # 22149) on :
 
Are you on abx's or pain killers?
 
Posted by Dekrator48 (Member # 18239) on :
 
On page 11 (symptom checklist) of Dr B's guidelines you will find:

"Exaggerated symptoms or worse hangover from alcohol".


http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf
 
Posted by Keebler (Member # 12673) on :
 
-
needanswers,

Yeah, I remember that was one of the first real clues I had that something was very wrong with my body. Just a few sips of a drink and I'd feel so ill for days.

You must not yet be on a treatment program as alcohol is not allowed for lyme patients. There are many important reasons for this but mostly because even a little alcohol can be very bad for the liver and for the brain. Lyme is a very, VERY toxic infection.

Also, with lyme, there can occur a kind of secondary porphyria, where the liver is even more bashed and the reaction can be even more damaging for a patient. Even a few sips can increase porphyrin levels in the body to a very dangerous level.

As well, there is no medicine in the world that does its best job with added alcohol. The window of opportunity for successful lyme treatment is very narrow. Our body needs all the help it can get.

Now, your reaction is pretty clear that LIVER SUPPORT supplements are very important for you. Has your LLMD given you suggestions yet for supplements?

===================

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

Treatment guidelines take up the majority of this document. Also of importance:

Sections regarding self-care:

From page 27:

CERTAIN ABSOLUTE RULES MUST BE FOLLOWED IF LYME SYMPTOMS ARE TO BE PERMANENTLY CLEARED:

1. Not allowed to get behind in sleep, or become overtired.

2. No caffeine or other stimulants that may affect depth or duration of sleep, or reduce or eliminate naps.

3. Absolutely no alcohol!

4. No smoking at all.

5. Aggressive exercises are required and should be initiated as soon as possible.

6. Diet must contain generous quantities of high quality protein and be high in fiber and low in fat and

carbohydrates- no simple carbohydrates are allowed. Instead, use those with low glycemic index.

7. Certain key nutritional supplements should be added.

8. COMPLIANCE!
-------------

and also on pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation.

No aerobics are allowed but other suggestions are included.

======================

This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

Nutritional Supplements in Disseminated Lyme Disease

J.J. Burrascano, Jr., MD (2008)

Four pages

======================

This book, by an ILADS member LLMD, holds great information about treatments options and support measures (including LIVER SUPPORT):

http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION (2008)

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it here and see customer reviews.

Web site: www.lymedoctor.com
-
 
Posted by TerryK (Member # 8552) on :
 
Very common in lyme and CFS (often misdiagnosed when it is actually lyme disease).

One of the first symptoms for me. I became drunk, vomiting and hungover on a fraction of what I was able to drink previously. I went to a movie one night with friends and had to throw up in a trash can on the way into the theatre because I drank a glass of wine with dinner. I was drunk too, on one glass of wine!! Very embarrassing.

Terry
 
Posted by needanswers (Member # 19745) on :
 
I am not on any meds and never have been. I was diagnosed last April but don't have health insurance. Per my neurologist, I was actually CDC positive. Had positive Elisa twice and had IGM 23 and 41 and IGG 41. That's positive, right? Think I've had this for many, many years as it explains a lot of symptoms.
 
Posted by sickpuppy (Member # 23846) on :
 
needanswers, you need treatment! What on earth are you waiting for? Please, please, please take care of yourself.

FYI, for me, just the smallest bit of wine, champagne, or beer made me feel bad trippy dizzy and panicy, plus terribly hungover. In fact, i feel hungover when I don't get enough sleep and sometimes for no reason at all. I stopped drinking 10 years ago on my own becasue I could tell it wasn't gonna fly with my body anymore. (Just got diagnosed 10/09 ).

sorry typos left hand/arm not working tonight.
 
Posted by Keebler (Member # 12673) on :
 
-
CDC positive (after 2 ELISAs) is about as positive as you can get, along with symptoms.

And you got NO treatment? Did they even think then to also test for other tick-borne infections? In the regular blood work-up, were you also anemic, by chance?

Are you interested in books detailing alternative methods, since you can't access a Rx treatment plan? Somehow, it is important to address this infection and there are several ways to do that. Even on a very limited budget, there are some things you can do.

It would be best if you had a LLMD but, with no insurance that is rough. Might you have any family or friends who could help in any way? Do they know this is a life-threatening infection? Do you?

Still, even if funds are just not there, there are many ways you can be proactive. You don't have to tell me exact amount (and I'm not asking) but if you have even $30- $50 a month for some sort of treatment, it would at least be something.

Doxycycline (Rx) can be relatively inexpensive. With one or two major supplements to help your liver and excellent self-care, it is important that you figure out some way to address this as best you can.

Are there any clinics in your town where you can see a doctor? There are also some programs to help with medicines.

Do you want some links to alternative or complementary paths? Some are discussed in the Singleton book, so I hope you will read that. You may be able to borrow it from your local lyme support group.

Good luck.

=======================

http://www.lymenet.org/SupportGroups

Find your Support Group
-
 
Posted by asummers (Member # 18068) on :
 
If you have limited funds I would suggest Salt/C protocol.

www.lymephotos.com
www.lymestrategies.com

You need to do something before your symptoms get worse.
 
Posted by kday (Member # 22234) on :
 
Alcohol intolerance came with my first symptoms. Couldn't even do one beer without feeling very sick.
 
Posted by Haley (Member # 22008) on :
 
I knew something was wrong when I was invited to go to my friends and have a bottle of Vueve Cliquot. I said NO! I would never say no to good Champagne.

That was truly the moment when I said something is very wrong.
 
Posted by Lymetoo (Member # 743) on :
 
Alcohol will also make an existing case of Candida much worse... ( or better known as yeast )

http://flash.lymenet.org/ubb/Forum1/HTML/021412.html

But look to lyme first!!
 
Posted by Need Lots of Help (Member # 18603) on :
 
I have never been able to drink. I would have the bartender mix up OJ and the red stuff to make it look like a drink because I used to get made fun of.

If I actually drank, I was home quickly and right to the toilet to puke my guts out. Here I am 20 years later and I finally know why....Lyme.

Don't drink!!!
Shalome
 
Posted by JOLA (Member # 23498) on :
 
I've been pretty strict w/my diet since diagnosis. Last night went out w/friends for dinner, had seafood, veggies and a large glass of red wine. Felt the best I had in a long time. For the first time in a long time I felt relaxed and I didn't take any benzos that night. I think its odd the healthiest longest living people follow a mediterranean diet which includes many of the no-nos. While I definitely would suggest moderation once in a while being normal works wonders.
 
Posted by Amy C (Member # 19297) on :
 
A few years ago when most of my symptoms started one thing I noticed is that I could only drink a few drinks and would feel very spacey and drugged and it wasn't my usual feeling for such a little amount of alcohol. Then I would be hung over for days.

Now I can't drink even a sip. I have tried many times and it goes straight to my head and makes me feel sooo ill. I have to avoid it no matter what.

And oh how I miss a good dark beer or a nice sweet glass of wine every now and then [Frown]

I am also sensitive to medications and their side effects. So other then antibiotics I take mostly herbs.
 
Posted by [email protected] (Member # 20152) on :
 
I couldn't go NEAR alcohol for awhile - made we want to die. After 8 months of treatment, I can have a glass of wine occasionally, and feel just fine. YAY. The only downside is that I now have to use willpower to say no, and I do, because I don't want to fry my liver any more than necessary. But there IS hope for alcohol intolerance resolving.
 


Powered by UBB.classic™ 6.7.3