-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- needanswers,
Yeah, I remember that was one of the first real clues I had that something was very wrong with my body. Just a few sips of a drink and I'd feel so ill for days.
You must not yet be on a treatment program as alcohol is not allowed for lyme patients. There are many important reasons for this but mostly because even a little alcohol can be very bad for the liver and for the brain. Lyme is a very, VERY toxic infection.
Also, with lyme, there can occur a kind of secondary porphyria, where the liver is even more bashed and the reaction can be even more damaging for a patient. Even a few sips can increase porphyrin levels in the body to a very dangerous level.
As well, there is no medicine in the world that does its best job with added alcohol. The window of opportunity for successful lyme treatment is very narrow. Our body needs all the help it can get.
Now, your reaction is pretty clear that LIVER SUPPORT supplements are very important for you. Has your LLMD given you suggestions yet for supplements?
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Very common in lyme and CFS (often misdiagnosed when it is actually lyme disease).
One of the first symptoms for me. I became drunk, vomiting and hungover on a fraction of what I was able to drink previously. I went to a movie one night with friends and had to throw up in a trash can on the way into the theatre because I drank a glass of wine with dinner. I was drunk too, on one glass of wine!! Very embarrassing.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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posted
I am not on any meds and never have been. I was diagnosed last April but don't have health insurance. Per my neurologist, I was actually CDC positive. Had positive Elisa twice and had IGM 23 and 41 and IGG 41. That's positive, right? Think I've had this for many, many years as it explains a lot of symptoms.
Posts: 13 | From philadelphia, pa | Registered: Mar 2009
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posted
needanswers, you need treatment! What on earth are you waiting for? Please, please, please take care of yourself.
FYI, for me, just the smallest bit of wine, champagne, or beer made me feel bad trippy dizzy and panicy, plus terribly hungover. In fact, i feel hungover when I don't get enough sleep and sometimes for no reason at all. I stopped drinking 10 years ago on my own becasue I could tell it wasn't gonna fly with my body anymore. (Just got diagnosed 10/09 ).
sorry typos left hand/arm not working tonight.
Posts: 702 | From North Eastern USA | Registered: Dec 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- CDC positive (after 2 ELISAs) is about as positive as you can get, along with symptoms.
And you got NO treatment? Did they even think then to also test for other tick-borne infections? In the regular blood work-up, were you also anemic, by chance?
Are you interested in books detailing alternative methods, since you can't access a Rx treatment plan? Somehow, it is important to address this infection and there are several ways to do that. Even on a very limited budget, there are some things you can do.
It would be best if you had a LLMD but, with no insurance that is rough. Might you have any family or friends who could help in any way? Do they know this is a life-threatening infection? Do you?
Still, even if funds are just not there, there are many ways you can be proactive. You don't have to tell me exact amount (and I'm not asking) but if you have even $30- $50 a month for some sort of treatment, it would at least be something.
Doxycycline (Rx) can be relatively inexpensive. With one or two major supplements to help your liver and excellent self-care, it is important that you figure out some way to address this as best you can.
Are there any clinics in your town where you can see a doctor? There are also some programs to help with medicines.
Do you want some links to alternative or complementary paths? Some are discussed in the Singleton book, so I hope you will read that. You may be able to borrow it from your local lyme support group.
posted
Alcohol intolerance came with my first symptoms. Couldn't even do one beer without feeling very sick.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
I knew something was wrong when I was invited to go to my friends and have a bottle of Vueve Cliquot. I said NO! I would never say no to good Champagne.
That was truly the moment when I said something is very wrong.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
I have never been able to drink. I would have the bartender mix up OJ and the red stuff to make it look like a drink because I used to get made fun of.
If I actually drank, I was home quickly and right to the toilet to puke my guts out. Here I am 20 years later and I finally know why....Lyme.
Don't drink!!! Shalome
Posts: 893 | From Florida | Registered: Dec 2008
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posted
I've been pretty strict w/my diet since diagnosis. Last night went out w/friends for dinner, had seafood, veggies and a large glass of red wine. Felt the best I had in a long time. For the first time in a long time I felt relaxed and I didn't take any benzos that night. I think its odd the healthiest longest living people follow a mediterranean diet which includes many of the no-nos. While I definitely would suggest moderation once in a while being normal works wonders.
Posts: 146 | From Vancouver, BC | Registered: Dec 2009
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posted
A few years ago when most of my symptoms started one thing I noticed is that I could only drink a few drinks and would feel very spacey and drugged and it wasn't my usual feeling for such a little amount of alcohol. Then I would be hung over for days.
Now I can't drink even a sip. I have tried many times and it goes straight to my head and makes me feel sooo ill. I have to avoid it no matter what.
And oh how I miss a good dark beer or a nice sweet glass of wine every now and then
I am also sensitive to medications and their side effects. So other then antibiotics I take mostly herbs.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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posted
I couldn't go NEAR alcohol for awhile - made we want to die. After 8 months of treatment, I can have a glass of wine occasionally, and feel just fine. YAY. The only downside is that I now have to use willpower to say no, and I do, because I don't want to fry my liver any more than necessary. But there IS hope for alcohol intolerance resolving.
Posts: 57 | From western Virginia | Registered: Apr 2009
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