I have RA brought on by lyme. My LLMD has perscribed this for me, at my request. Does anyone else have experence with it?
I am just worried about what to expect.
lr26
Posted by TerryK (Member # 8552) on :
I tried it for several months. I could not tolerate it. I had terrible insomnia that did not resolve. There are a number of posts here in the archives. Search for "LDN" or "Naltrexone" by using the search button in the top 1/3 of the page.
Terry
Posted by mrpotto (Member # 15123) on :
I'm about 3 months in and worked my way up 4.5 mgs. Good news - I can tolerate it ok. Bad news - I don't think it's doing anything for me.
As you know - what works for one may not work for others.
Posted by lr26 (Member # 7437) on :
Thanks for the responce. I have high hopes for this. I will try the search engine again. I typed the whole word, maybe LDN would work better.
Some where I was reading that it seemed to work for people with autoimune caused by lyme.
I will get mine in on Monday and will let you's know if it helps me or not.
lr26
Posted by DeniseNM (Member # 11182) on :
I started it a couple of weeks ago and am up to 2 mgs per night. I don't have horrid insomnia, although I do wake up a few more times, and the dreams have been ok. Am upping my dose to 3 mg. this weekend.
I think it's helping with my MS-neuro stuff. I feel more clear-headed, which is good, because the spaciness is annoying my employer!
Posted by lr26 (Member # 7437) on :
My LLMD is starting me at 1.5 mg for the 1st mo., then 3mg the second mo., then 4.5mg.
lr26
Posted by MariaA (Member # 9128) on :
Some people with insomnia take it in the morning instead of at night. It still seems to work even if not taken at the ideal nighttime period, from what folks have reported here.
Posted by street129 (Member # 23472) on :
i've been using it early last year, i stop taking it,it dont do anything for me.....nada
Posted by Robin123 (Member # 9197) on :
I spoke with Dr Bihari in NYC, the main proponent for naltrexone, and asked him how it would work for Lyme patients. He said 50/50, meaning for some, yes, for others, no.
So, like anything here, we try something to see if it works for us.
My opinion is that we should work up slowly with something, so in this case, start at 1.5mg and work up slowly to 4.5mg.