LymeNet Flash: has anyone tryed naltexone?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » has anyone tryed naltexone?

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Author

Topic: has anyone tryed naltexone?

lr26
Member
Member # 7437

posted

Hi,

I have RA brought on by lyme. My LLMD has perscribed this for me, at my request. Does anyone else have experence with it?

I am just worried about what to expect.

lr26

Posts: 94 | Registered: Jun 2005 | IP: Logged |

TerryK
Frequent Contributor (5K+ posts)
Member # 8552

posted

I tried it for several months. I could not tolerate it. I had terrible insomnia that did not resolve. There are a number of posts here in the archives. Search for "LDN" or "Naltrexone" by using the search button in the top 1/3 of the page.

Terry

Posts: 6286 | From Oregon | Registered: Jan 2006 | IP: Logged |

mrpotto
LymeNet Contributor
Member # 15123

posted

I'm about 3 months in and worked my way up 4.5 mgs. Good news - I can tolerate it ok. Bad news - I don't think it's doing anything for me.

As you know - what works for one may not work for others.

--------------------
dx in Dec 2003
tested 2x positive for bart
Lightly Chelating
3 weeks off abx and 1 week on:

10 day course a month: Plaq/Ceftin/Rifampin/Biaxin with Tindamax on last two days

Posts: 187 | From PA | Registered: Apr 2008 | IP: Logged |

lr26
Member
Member # 7437

posted

Thanks for the responce. I have high hopes for this. I will try the search engine again. I typed the whole word, maybe LDN would work better.

Some where I was reading that it seemed to work for people with autoimune caused by lyme.

I will get mine in on Monday and will let you's know if it helps me or not.

lr26

Posts: 94 | Registered: Jun 2005 | IP: Logged |

DeniseNM
LymeNet Contributor
Member # 11182

posted

I started it a couple of weeks ago and am up to 2 mgs per night. I don't have horrid insomnia, although I do wake up a few more times, and the dreams have been ok. Am upping my dose to 3 mg. this weekend.

I think it's helping with my MS-neuro stuff. I feel more clear-headed, which is good, because the spaciness is annoying my employer!

--------------------
dx: MS in 1998
2007 - Lyme suspected
2009 - Positive Lyme, MS worse. Now: Copaxone shots for MS
gall bladder out 7/09
Ceftin, Zith, Septra
LDN
Acyclovir
Monolaurin, DHEA, Pregnonelon, Curcumin

Posts: 243 | From New Mexico | Registered: Feb 2007 | IP: Logged |

lr26
Member
Member # 7437

posted

My LLMD is starting me at 1.5 mg for the 1st mo., then 3mg the second mo., then 4.5mg.

lr26

Posts: 94 | Registered: Jun 2005 | IP: Logged |

MariaA
Frequent Contributor (1K+ posts)
Member # 9128

posted

Some people with insomnia take it in the morning instead of at night. It still seems to work even if not taken at the ideal nighttime period, from what folks have reported here.

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

Posts: 2552 | From San Francisco | Registered: Apr 2006 | IP: Logged |

street129
LymeNet Contributor
Member # 23472

posted

i've been using it early last year, i stop taking it,it dont do anything for me.....nada

--------------------
IgM: Neg Neg 34IND 39IND
41+ 83-93IND

IgG: Neg Neg 41+

cfs, hhv6, mycobacterium, hsv1, cmv, pirovirus, and Epstein Barr virus.... digestive system

GOD GIVE IT, AND GOD CAN TAKE IT AWAY

Posts: 655 | From new york | Registered: Dec 2009 | IP: Logged |

Robin123
Moderator
Member # 9197

posted

I spoke with Dr Bihari in NYC, the main proponent for naltrexone, and asked him how it would work for Lyme patients. He said 50/50, meaning for some, yes, for others, no.

So, like anything here, we try something to see if it works for us.

My opinion is that we should work up slowly with something, so in this case, start at 1.5mg and work up slowly to 4.5mg.

Posts: 13116 | From San Francisco | Registered: May 2006 | IP: Logged |

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