1:30 pm EST Susan Connell, European equivalent of CDC Late Lyme is quite responsive to treatment--even neurological MS presentation
Searched for evidence of seronegative late Lyme if it occurs at all is extremely rare
No reliable reports of seronegative late Lyme ============================================== Looks like we may have gotten something out of it. Or I may be misinterpreting.
Thanks all.
[ 04-29-2010, 05:19 PM: Message edited by: Pinelady ]
Posted by radfaraf (Member # 11909) on :
Seronegative means a negative test result.
That statement is saying they have no reliable reports of lyme existing with negative test results which is bull.
Posted by Rumigirl (Member # 15091) on :
Both links aren't working. Thanks, TC (and Lorraine, LDA).
Posted by Pinelady (Member # 18524) on :
Yes but MS presentations many times do not present
until treatment begins and that can take months to
be responsive. But your right. They will probably deny it.
Posted by Pinelady (Member # 18524) on :
I hear folks from the Lyme community did very well!
Posted by Pinelady (Member # 18524) on :
Sorry not all got to listen in-phone set up.
Posted by lymie_in_md (Member # 14197) on :
I was there and provided a 5 minute comment. I believe the lyme world was very well represented. I believe the commitee was moved by the comments given by all, only time will tell with how well.
Posted by Pinelady (Member # 18524) on :
Bob I submitted a long question to the panel on Morgellons.
The long part was who all I included to be asked the question...
Can you tell me if it was presented?
Posted by lymie_in_md (Member # 14197) on :
I didn't hear it presented, I'll ask some other folks who went tomorrow and let you if they heard anything about a morgellon's question to the panel.
Posted by lymie_in_md (Member # 14197) on :
![[Big Grin]](biggrin.gif)