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» LymeNet Flash » Questions and Discussion » Medical Questions » LIVE NOW- Blogging from IOM meeting

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Author Topic: LIVE NOW- Blogging from IOM meeting
Tincup
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Lorraine Johnson is live blogging (notes) from the IOM meeting today in Washington, DC.

http://www.lymedisease.org/news/lymepolicywonk/407.html

The LDA and other groups traveled the long distance to be able to speak for 5 minutes during the public portion.

Thanks to all who made the efforts!

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www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org
Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
ping
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Thank you, Tincup!

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ping
"We are more than containers for Lyme"
Posts: 1302 | From Back in TX again | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Allie
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Looks like there is a new link for the blog

http://www.lymedisease.org/news/idsa_lyme_hearing/410.html
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Pinelady
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1:30 pm EST Susan Connell, European equivalent of CDC
Late Lyme is quite responsive to treatment--even neurological MS presentation

Searched for evidence of seronegative late Lyme if it occurs at all is extremely rare

No reliable reports of seronegative late Lyme
==============================================
Looks like we may have gotten something out of it. Or I may be misinterpreting.

Thanks all.

[ 04-29-2010, 05:19 PM: Message edited by: Pinelady ]

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Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis
Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
radfaraf
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Seronegative means a negative test result.

That statement is saying they have no reliable reports of lyme existing with negative test results which is bull.
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Rumigirl
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Both links aren't working. Thanks, TC (and Lorraine, LDA).
Posts: 3771 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Pinelady
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Yes but MS presentations many times do not present

until treatment begins and that can take months to

be responsive. But your right. They will probably deny it.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis
Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Pinelady
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http://www8.nationalacademies.org/cp/projectview.aspx?key=49216

Feedback Button for asking questions or submitting information.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis
Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
Tincup
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Here are the details...

http://www.lymedisease.org/news/

I hear folks from the Lyme community did very well!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org
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Pinelady
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Sorry not all got to listen in-phone set up.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis
Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
lymie_in_md
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I was there and provided a 5 minute comment. I believe the lyme world was very well represented. I believe the commitee was moved by the comments given by all, only time will tell with how well.

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Bob
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Pinelady
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Bob I submitted a long question to the panel on Morgellons.

The long part was who all I included to be asked the question...

Can you tell me if it was presented?

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis
Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
lymie_in_md
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I didn't hear it presented, I'll ask some other folks who went tomorrow and let you if they heard anything about a morgellon's question to the panel.

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Bob
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lymie_in_md
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don't think it was presented pinelady.

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Bob
Posts: 2150 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
   

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