Any parent with kids with OCD or tics might be interested.
One thing that has helped a lot of PANDAS and PITANDS kids is IVIG treatments. I have read
Lyme patients have been helped by these also. Has anyone here tried it? How expensive are they?
I already know my insurance doesn't cover it for anything remotely similar to my son's diagnosis.
And how about IV antibiotics? My insurance won't cover that either. How much is it? I am thinking
about trying another western blot and hoping to get lucky with a CDC positive test. Then maybe my
insurance will cover 4 weeks of it. But, if not, am I going to go bankrupt paying out of pocket?
Thanks.
Posted by jkmom (Member # 14004) on :
My daughter could probably fit that dx, but I am concerned about labeling her with an autoimmune problem.
She has low IgG antibodies and one LLMD we consulted was excited about the possibility of IVIgG for her. We were told by this LLMD that it is about $2,000 per week for 1 1/2 years so most people didn't do it if insurance didn't cover it. She thought my daughter's test results were low enough that insurance might cover it.
We ended up going with another LLMD for now, and he doesn't recommend that at this time so we haven't pursued it.
Posted by Jasmin (Member # 19959) on :
I can understand that concern since that is how they blow off chronic Lyme.
Wow... I guess IVIG is out of the question for me. I need to do something different.