LymeNet Flash: IVIG and cost of IV abx

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»	LymeNet Flash » Questions and Discussion » Medical Questions » IVIG and cost of IV abx

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Topic: IVIG and cost of IV abx

Jasmin
LymeNet Contributor
Member # 19959

posted

My son has become much worse. Last night was the worst night of our lives.

I have a new label for my son's symptoms now PITANDS - pediatric infection triggered autoimmune neuropsychiatric disorder.

http://webpediatrics.com/pandas.html.

Any parent with kids with OCD or tics might be interested.

One thing that has helped a lot of PANDAS and PITANDS kids is IVIG treatments. I have read

Lyme patients have been helped by these also. Has anyone here tried it? How expensive are they?

I already know my insurance doesn't cover it for anything remotely similar to my son's diagnosis.

And how about IV antibiotics? My insurance won't cover that either. How much is it? I am thinking

about trying another western blot and hoping to get lucky with a CDC positive test. Then maybe my

insurance will cover 4 weeks of it. But, if not, am I going to go bankrupt paying out of pocket?

Thanks.

--------------------
Never doubt in darkness what the daylight proves to you.

Posts: 418 | From Utah | Registered: Apr 2009 | IP: Logged |

jkmom
LymeNet Contributor
Member # 14004

posted

My daughter could probably fit that dx, but I am concerned about labeling her with an autoimmune problem.

She has low IgG antibodies and one LLMD we consulted was excited about the possibility of IVIgG for her. We were told by this LLMD that it is about $2,000 per week for 1 1/2 years so most people didn't do it if insurance didn't cover it. She thought my daughter's test results were low enough that insurance might cover it.

We ended up going with another LLMD for now, and he doesn't recommend that at this time so we haven't pursued it.

Posts: 984 | From US | Registered: Dec 2007 | IP: Logged |

Jasmin
LymeNet Contributor
Member # 19959

posted

I can understand that concern since that is how they blow off chronic Lyme.

Wow... I guess IVIG is out of the question for me. I need to do something different.

--------------------
Never doubt in darkness what the daylight proves to you.

Posts: 418 | From Utah | Registered: Apr 2009 | IP: Logged |

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