I have my 2nd LLMD visit tomorrow. For the first month, he started me out with only 1 abx. It was azith. My symptoms are actually much better except joint pain is worse.
What abx would you suggest I push the doctor for? Testing for coinfections was negative for whatever that is worth.
** edited to remove specific dosage **
[ 06-21-2010, 05:59 PM: Message edited by: sixgoofykids ]
Posted by sixgoofykids (Member # 11141) on :
Maybe something that would hit another form of the borrelia?
Posted by Lymetoo (Member # 743) on :
Is this for a recent tick bite?? If not, then maybe add flagyl? or try ceftin??
Posted by geo (Member # 18333) on :
No, mistreated and misdiagnosed for about a year and a half. CDC positive in Nov 08 but only received 30 days of doxy (100 mg)
Posted by 'Kete-tracker (Member # 17189) on :
I've read that Zith, by itself, doesn't really kick butt in the Lyme dept. That joint pain Might just be a "herx" reaction (the body dealing with all the dead little pieces of the buggers).
Hmmm... I'd think he might want to put you on a macrolide abx, or a "cell-wall" one. Maybe Biaxin? Or Ceftin? (It's summertime... no tetracyclines) Aynd he can always add things in later.
-------------------- I'm no doc... but I play golf!
Posted by bcb1200 (Member # 25745) on :
I would ask your LLMD about treating all 3 forms of lyme. Intracellular, extracellular, and cyst.
I think the azith only does the intracellular form (outside cell walls.) YOu need something to get the Bb hiding within cells (intracellular.) Then you have to get the cysts.
I was on 400mg of Doxy. This gets both intra and extra cellular forms. I then pulse Flagyl for 3 days every 2 weeks to get the cysts.
I have just dropped the doxy after 6 weeks. I did fine on it, but hate having to hide from the sun like a vampire. I'm now on Biaxin (intracellular) and Amantadine (Extracellular) and am continuing to pulse Flagyl.
Posted by amyc (Member # 26587) on :
May I ask you a question? Who do you use as your LLMD? I am at Mayo's in Rockchester, MN and seem to be getting no where. Please help!!!
Posted by bcb1200 (Member # 25745) on :
I'm not sure who you are asking, but if you are getting treated at the Mayo clinic, you are not being seen by an LLMD.
Posted by amyc (Member # 26587) on :
We just relieved that, but we are going to stay to see what they say. I am so scared. Can you please tell me where u went and the name of the doctor?
Posted by tmcm (Member # 23249) on :
AMYC---Look for Dr C in Columbia MO...LLMD is what you need!
Posted by sutherngrl (Member # 16270) on :
Hold the "Mayo".......as is commonly said around here.
Many post about people's horrid experience at Mayo concerning LD. They will never diagnose anyone with LD. If they did, they would under treat.