posted
I have my 2nd LLMD visit tomorrow. For the first month, he started me out with only 1 abx. It was azith. My symptoms are actually much better except joint pain is worse.
What abx would you suggest I push the doctor for? Testing for coinfections was negative for whatever that is worth.
** edited to remove specific dosage **
[ 06-21-2010, 05:59 PM: Message edited by: sixgoofykids ]
Posts: 749 | From State full of ticks | Registered: Dec 2008
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Maybe something that would hit another form of the borrelia?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
No, mistreated and misdiagnosed for about a year and a half. CDC positive in Nov 08 but only received 30 days of doxy (100 mg)
Posts: 749 | From State full of ticks | Registered: Dec 2008
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'Kete-tracker
Frequent Contributor (1K+ posts)
Member # 17189
posted
I've read that Zith, by itself, doesn't really kick butt in the Lyme dept. That joint pain Might just be a "herx" reaction (the body dealing with all the dead little pieces of the buggers).
Hmmm... I'd think he might want to put you on a macrolide abx, or a "cell-wall" one. Maybe Biaxin? Or Ceftin? (It's summertime... no tetracyclines) Aynd he can always add things in later.
-------------------- I'm no doc... but I play golf!
Posts: 1233 | From Dover, NH | Registered: Sep 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I would ask your LLMD about treating all 3 forms of lyme. Intracellular, extracellular, and cyst.
I think the azith only does the intracellular form (outside cell walls.) YOu need something to get the Bb hiding within cells (intracellular.) Then you have to get the cysts.
I was on 400mg of Doxy. This gets both intra and extra cellular forms. I then pulse Flagyl for 3 days every 2 weeks to get the cysts.
I have just dropped the doxy after 6 weeks. I did fine on it, but hate having to hide from the sun like a vampire. I'm now on Biaxin (intracellular) and Amantadine (Extracellular) and am continuing to pulse Flagyl.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
May I ask you a question? Who do you use as your LLMD? I am at Mayo's in Rockchester, MN and seem to be getting no where. Please help!!!
Posts: 3 | From Saint Joseph, Missouri | Registered: Jun 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I'm not sure who you are asking, but if you are getting treated at the Mayo clinic, you are not being seen by an LLMD.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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posted
We just relieved that, but we are going to stay to see what they say. I am so scared. Can you please tell me where u went and the name of the doctor?
Posts: 3 | From Saint Joseph, Missouri | Registered: Jun 2010
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posted
AMYC---Look for Dr C in Columbia MO...LLMD is what you need!
Posts: 52 | From Illinois | Registered: Nov 2009
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
Hold the "Mayo".......as is commonly said around here.
Many post about people's horrid experience at Mayo concerning LD. They will never diagnose anyone with LD. If they did, they would under treat.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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