So...just wondering who here does NOT have fatigue?
I had fatigue months ago...but it is pretty much gone now. I have energy and feel almost normal except for occational dizziness and lyme brain, tinnitus and full feeling ears.
I'm pleased with my progress over the past 8 weeks. I still have some symptoms, but am much improved over all.
Keep the faith!
Posted by mmcmann (Member # 21872) on :
Wow. No fatigue after 8 weeks?! I am jealous
I am going on 9 months and still have crippling fatigue.
Best of luck to you and continued improvement.
Posted by seekhelp (Member # 15067) on :
Sorry, I'm not in the no fatigue category. I believe Richidie is based on this person's posts.
Posted by Kirk (Member # 24483) on :
Sounds like you are improving. My fatigue has always been minimal, at least what I consider to be 'fatigue' is different from what I usually feel.
I describe my symptom as 'weakness', in other words its an overall weak/'funny' feeling and if I try to exert myself I wilt and get shaky.
'Fatigue' in my opinion is accompanied by sleepiness or is associated with the need to rest or sleep. I only feel 'tired' sometimes but I have the weakness often (off and on).
I also have the dizzyness, which is the most annoying and stubborn of all the symptoms. Lately, with my new prescription, that has reduced too and seems to come and go more (where as before it was all the time) and is less intense.
I am on 1,500mg of zithro and 1,500 mepron, I think I'm seeing more results from this combo than I ever got from Doxy (5 months).
Let's keep the faith dude, we are improving! By this time next year we will have our lives back.
Posted by greengirl (Member # 25316) on :
I used to complain about fatigue and got a sleep study to investigate narcolepsy. Fortunately the fatigue was one of the first symptoms to go.
But, I still need so much rest because of the pain. But that feels different. Like, I know I'm getting tired and need to rest as opposed to nodding off at a stop light.
Posted by bcb1200 (Member # 25745) on :
Wow, Kirk. I love the attitude.
I WILL be better and off drugs by this time next year. That is a promise!
I still haven't gone after the Babs or Bart yet. Think that will be in the fall.
Posted by Lymetoo (Member # 743) on :
That's great, bcb! I would doubt you have babesia if you have no fatigue. Did your test come back positive? That may be one you won't have to worry about!
For those who still have crushing fatigue.. look to babesia.
Kirk, for example, is now improving on zith and MEPRON (for babesia.)
Posted by Dawn in VA (Member # 9693) on :
It's not been one of my big issues.
Sorry to contradict Lymetoo on this one, but I do have Labcorp-positive Babesia duncani, so I don't think severe fatigue and Babs always go hand-in-hand. (Unless you're very anemic, which Babs can induce.)
Posted by nellers78 (Member # 26774) on :
That is fantastic! I'm hoping I'll react as favorably. Fatigue is one of my worst symptoms but I'm also dealing with adrenal issues...
Posted by BackinStOlaf (Member # 23725) on :
It was never one of my symptoms
Posted by ukcarry (Member # 18147) on :
It's always been a very disabling symptom in my [long] illness and I was originally diagnosed with ME/CFS.
Fatigue levels vary like many other symptoms, but are never anything like normal.
I have noticed that, whereas some people with Lyme are very fatigued, others seem to be able to go on long walks, go to the gym, do some physical work.
The variation may be to do with the host's make-up, the different combinations of bacteria, the length of illness or the presence of viruses alongside the bacteria [perhaps XMRV?].
Posted by Amy C (Member # 19297) on :
Fatigue is my worst symptom! Have had it for about 5+ years. So bad I am on the couch most of the day. When I get the energy to do things I am down again for days afterwards.
I wonder if it's Babesia? Or dysautonomia? Because I have symptoms of both.
Posted by Wonko (Member # 18318) on :
Fatigue is no longer my biggest issue, though it still crops up more than I would like.
My fatigue is much worse when I'm on heavier treatment than when I'm on light treatment or on a break from abx. Before I was diagnosed, I had it all of the time. Now it seems to be more of a Herx symptom that comes and goes.
On my better days when I can stay up past 8 or 9 PM without feeling awful, or without getting "payback" the next day, it thrills me.
I also need to watch out for heat. If I get overheated for too long, my fatigue will return and ruin at least a day for me.
So for me it didn't just vanish overnight, instead it has been slow to resolve and can still make a comeback. I try my best to budget my time and to avoid procrastinating big jobs, since I know I can't rely on myself to work long stretches like I used to.
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