bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
So...just wondering who here does NOT have fatigue?
I had fatigue months ago...but it is pretty much gone now. I have energy and feel almost normal except for occational dizziness and lyme brain, tinnitus and full feeling ears.
I'm pleased with my progress over the past 8 weeks. I still have some symptoms, but am much improved over all.
Keep the faith!
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
Wow. No fatigue after 8 weeks?! I am jealous
I am going on 9 months and still have crippling fatigue.
Best of luck to you and continued improvement.
Posts: 104 | From No. VA | Registered: Aug 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Sorry, I'm not in the no fatigue category. I believe Richidie is based on this person's posts.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Sounds like you are improving. My fatigue has always been minimal, at least what I consider to be 'fatigue' is different from what I usually feel.
I describe my symptom as 'weakness', in other words its an overall weak/'funny' feeling and if I try to exert myself I wilt and get shaky.
'Fatigue' in my opinion is accompanied by sleepiness or is associated with the need to rest or sleep. I only feel 'tired' sometimes but I have the weakness often (off and on).
I also have the dizzyness, which is the most annoying and stubborn of all the symptoms. Lately, with my new prescription, that has reduced too and seems to come and go more (where as before it was all the time) and is less intense.
I am on 1,500mg of zithro and 1,500 mepron, I think I'm seeing more results from this combo than I ever got from Doxy (5 months).
Let's keep the faith dude, we are improving! By this time next year we will have our lives back.
Posts: 41 | From astoria, new york | Registered: Feb 2010
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posted
I used to complain about fatigue and got a sleep study to investigate narcolepsy. Fortunately the fatigue was one of the first symptoms to go.
But, I still need so much rest because of the pain. But that feels different. Like, I know I'm getting tired and need to rest as opposed to nodding off at a stop light.
Posts: 252 | From New York | Registered: Apr 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
Wow, Kirk. I love the attitude.
I WILL be better and off drugs by this time next year. That is a promise!
I still haven't gone after the Babs or Bart yet. Think that will be in the fall.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
That's great, bcb! I would doubt you have babesia if you have no fatigue. Did your test come back positive? That may be one you won't have to worry about!
For those who still have crushing fatigue.. look to babesia.
Kirk, for example, is now improving on zith and MEPRON (for babesia.)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
It's not been one of my big issues.
Sorry to contradict Lymetoo on this one, but I do have Labcorp-positive Babesia duncani, so I don't think severe fatigue and Babs always go hand-in-hand. (Unless you're very anemic, which Babs can induce.)
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
That is fantastic! I'm hoping I'll react as favorably. Fatigue is one of my worst symptoms but I'm also dealing with adrenal issues...
Posts: 256 | From Texas | Registered: Jun 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
It was never one of my symptoms
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
It's always been a very disabling symptom in my [long] illness and I was originally diagnosed with ME/CFS.
Fatigue levels vary like many other symptoms, but are never anything like normal.
I have noticed that, whereas some people with Lyme are very fatigued, others seem to be able to go on long walks, go to the gym, do some physical work.
The variation may be to do with the host's make-up, the different combinations of bacteria, the length of illness or the presence of viruses alongside the bacteria [perhaps XMRV?].
Posts: 1647 | From UK | Registered: Nov 2008
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posted
Fatigue is my worst symptom! Have had it for about 5+ years. So bad I am on the couch most of the day. When I get the energy to do things I am down again for days afterwards.
I wonder if it's Babesia? Or dysautonomia? Because I have symptoms of both.
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
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posted
Fatigue is no longer my biggest issue, though it still crops up more than I would like.
My fatigue is much worse when I'm on heavier treatment than when I'm on light treatment or on a break from abx. Before I was diagnosed, I had it all of the time. Now it seems to be more of a Herx symptom that comes and goes.
On my better days when I can stay up past 8 or 9 PM without feeling awful, or without getting "payback" the next day, it thrills me.
I also need to watch out for heat. If I get overheated for too long, my fatigue will return and ruin at least a day for me.
So for me it didn't just vanish overnight, instead it has been slow to resolve and can still make a comeback. I try my best to budget my time and to avoid procrastinating big jobs, since I know I can't rely on myself to work long stretches like I used to.
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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