Hi, I am just curious to know how long it took from the start of symptoms until you were diagnosed and how long you have been in treatment for.
For me Symptoms started in December and diagnosed in June so 6 months.. started ABX 10 days ago.
Posted by sixgoofykids (Member # 11141) on :
Started showing symptoms in the 1970's. No one believed me. Was disabled three times by fatigue. Had fibromyalgia at times but not constant. Used diet, exercise, sunshine, etc. also got amalgams out and chelated. Was in remission for 12 years.
7 years ago got bitten again. Became completely disabled this time. It took 3 years for ME to figure out what it was as the doctors again didn't believe me, I got a Somatization Disorder diagnosis.
After 3 years of treatment, I am well today and next month will have been in remission for one year.
Posted by LA (Member # 26353) on :
I had symptoms for 3-4 years. It was 15 months from when I first went to my doctor about it until my diagnosis. I am in my second week of treatment also.
Posted by bcb1200 (Member # 25745) on :
6 months total symptoms, the last 4 of which were bad.
Posted by CherylSue (Member # 13077) on :
7 1/2 years before diagnosis. Was on medical leave. After 18 months of treatment went back to work. Have been on abx for almost 3 years. Hope to wean off soon.
Posted by Leelee (Member # 19112) on :
I went years and years. Some of my symptoms began in the 1970's.
It has been a life-long struggle.
I was diagnosed in April, 2009. I see progress with my treatment but the end is still a long ways off.
Posted by jwall (Member # 22999) on :
1.5 years
Posted by sutherngrl (Member # 16270) on :
2 years ill before treatment.....been treating 2 years and 2 months.
Posted by BackinStOlaf (Member # 23725) on :
Symptoms started in the summer of 2009. Diagnosed in Feb 2010..
I am on month 6 of treatment. Have good days and bad days but can still work full time.
Posted by zil (Member # 12048) on :
Started having issues with fatigue, sleeping too much early 20's. Diagnosed 3 yrs ago in my 50's. Have been disabled mostly housebound since 1999. I'm 56 progress is slow.
Posted by Cattail (Member # 24357) on :
I too started symptoms December 09 and got diagnosed this June. I have been on abx for 6 weeks today.
Posted by kellephant (Member # 24885) on :
i have been noticably sick for 7 years.. was just diagnosed in april.
Posted by triathletelymie (Member # 26456) on :
I started symptoms 10/09...'didn't get diagnosed until 4/10...so six months.
'Been in treatment since 4/10, a little over three months...no improvement yet...
Posted by JunkYardWily (Member # 24271) on :
had some weird symptoms for the last couple of years but had a bite on me in 9-09.
four weeks later got sick. three weeks later got diagnosed. in treatment since 10-09.
very little progress. some neuro symptoms no longer present. the worst symptom, feeling sick all the time, still at large
Posted by PeterHSV (Member # 27166) on :
My symptoms (headache, sore stiff neck) started July 1, 2010. Started doxyclclene July 16. Feeling much better on July 23.
Posted by nefferdun (Member # 20157) on :
I was bitten by the tick the end of May 2006. Got the rash and was very sick - at the doctors office in June. Was told nothing was wrong. Over and over told ticks do not carry lyme in Montana. Even though I was not asking about lyme, my symptoms were classic.
So I diagnosed myself the end of Jan 2008 while researching chronic fatigue online.
Feb 2009 I was diagnosed with bartonella by a LLMD.
Been in treatment all that time. I am doing very well. . . knock on wood.
Posted by LymeMom Kellye (Member # 24807) on :
11 years from bite to fully disabled. Imbedded tick in scalp at age 5. Symptoms began at age 7 and slowly progessed for the next 8 years.
In the right kind of treatment for 4 months, starting to show some signs of improvement.