posted
Hi, I am just curious to know how long it took from the start of symptoms until you were diagnosed and how long you have been in treatment for.
For me Symptoms started in December and diagnosed in June so 6 months.. started ABX 10 days ago.
Posts: 574 | From Out there somewhere | Registered: Jul 2010
| IP: Logged |
posted
Started showing symptoms in the 1970's. No one believed me. Was disabled three times by fatigue. Had fibromyalgia at times but not constant. Used diet, exercise, sunshine, etc. also got amalgams out and chelated. Was in remission for 12 years.
7 years ago got bitten again. Became completely disabled this time. It took 3 years for ME to figure out what it was as the doctors again didn't believe me, I got a Somatization Disorder diagnosis.
After 3 years of treatment, I am well today and next month will have been in remission for one year.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
I had symptoms for 3-4 years. It was 15 months from when I first went to my doctor about it until my diagnosis. I am in my second week of treatment also.
Posts: 60 | From NJ | Registered: Jun 2010
| IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
6 months total symptoms, the last 4 of which were bad.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
7 1/2 years before diagnosis. Was on medical leave. After 18 months of treatment went back to work. Have been on abx for almost 3 years. Hope to wean off soon.
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I went years and years. Some of my symptoms began in the 1970's.
It has been a life-long struggle.
I was diagnosed in April, 2009. I see progress with my treatment but the end is still a long ways off.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
| IP: Logged |
posted
1.5 years
Posts: 618 | From NC | Registered: Oct 2009
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
2 years ill before treatment.....been treating 2 years and 2 months.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Symptoms started in the summer of 2009. Diagnosed in Feb 2010..
I am on month 6 of treatment. Have good days and bad days but can still work full time.
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
| IP: Logged |
posted
Started having issues with fatigue, sleeping too much early 20's. Diagnosed 3 yrs ago in my 50's. Have been disabled mostly housebound since 1999. I'm 56 progress is slow.
Posts: 383 | From Ar | Registered: May 2007
| IP: Logged |
posted
I too started symptoms December 09 and got diagnosed this June. I have been on abx for 6 weeks today.
Posts: 319 | From Mass | Registered: Feb 2010
| IP: Logged |
posted
I started symptoms 10/09...'didn't get diagnosed until 4/10...so six months.
'Been in treatment since 4/10, a little over three months...no improvement yet...
-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
| IP: Logged |
posted
My symptoms (headache, sore stiff neck) started July 1, 2010. Started doxyclclene July 16. Feeling much better on July 23.
Posts: 2 | From Huntsville, al | Registered: Jul 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I was bitten by the tick the end of May 2006. Got the rash and was very sick - at the doctors office in June. Was told nothing was wrong. Over and over told ticks do not carry lyme in Montana. Even though I was not asking about lyme, my symptoms were classic.
So I diagnosed myself the end of Jan 2008 while researching chronic fatigue online.
Feb 2009 I was diagnosed with bartonella by a LLMD.
Been in treatment all that time. I am doing very well. . . knock on wood.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
11 years from bite to fully disabled. Imbedded tick in scalp at age 5. Symptoms began at age 7 and slowly progessed for the next 8 years.
In the right kind of treatment for 4 months, starting to show some signs of improvement.
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic