I hope they're not too "Permanente"-God Bless everyone that HAS to deal with them.........
Joe
Posted by dogmom2 (Member # 23822) on :
thanks for posting this. I wish every als patient could have access to this information. Those with ms, parkinson's etc. too. Thank goodness his family didn't give up.
diana
Posted by hadlyme (Member # 6364) on :
Sure wish my dad would have had these kinds of options before he died of ALS. My dad's sister also, whom died of ALS. (And now I have lyme/babs....... Seems a bit fishy how it's in some families.)
Posted by Pinelady (Member # 18524) on :
Advocates can send info to news agency's to try to put him on the right road...
Posted by jeffinca11 (Member # 25584) on :
awesome story.
Posted by grandmother (Member # 19908) on :
Any chance they'll sue KP?
Posted by Pinelady (Member # 18524) on :
Sad that they are the researchers/jokers doing the Morgellons study---on our dollars.
Posted by nenet (Member # 13174) on :
Thank you very much for sharing this - what an inspiration he and his family are. The whole story is heartwarming (after the initial horror of the misdiagnosis of course).
I just posted it to my facebook. Hopefully it might eventually reach someone that knows someone with an ALS diagnosis.
At that point, any differential diagnoses are worth a shot.
Posted by Remember to Smile (Member # 25481) on :
Good find, Joe. That first link expired, so use this for the article on Bart F. learning he has LD, not ALS:
- KAISER PAPERS is NOT an official Kaiser Permanente site, but a patient advocacy site. You might start with this basic link full of startling details:
The Kaiser Papers is an advocacy site opposed to several medical and business practices of Kaiser Permanente.
The Kaiser Papers offers personal accounts, allegations, news, links and suggestions for people to obtain information and assistance when they are navigating the health care system.