LymeNet Flash: ALS+ Lyme+ "Kaiser Permanente"

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»	LymeNet Flash » Questions and Discussion » Medical Questions » ALS+ Lyme+ "Kaiser Permanente"

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Author

Topic: ALS+ Lyme+ "Kaiser Permanente"

jklynd
LymeNet Contributor
Member # 7550

posted

With doctors like the ones mentioned in the article-
http://www.mercurynews.com/columns/ci_15633546?nclick_check=1

I hope they're not too "Permanente"-God Bless everyone that HAS to deal with them.........

Joe

Posts: 249 | From Northern NJ | Registered: Jul 2005 | IP: Logged |

dogmom2
LymeNet Contributor
Member # 23822

posted

thanks for posting this. I wish every als patient could have access to this information. Those with ms, parkinson's etc. too. Thank goodness his family didn't give up.

diana

Posts: 857 | From northern california | Registered: Dec 2009 | IP: Logged |

hadlyme
LymeNet Contributor
Member # 6364

posted

Sure wish my dad would have had these kinds of options before he died of ALS. My dad's sister also, whom died of ALS. (And now I have lyme/babs....... Seems a bit fishy how it's in some families.)

--------------------
Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again!

Posts: 941 | From AZ-MT | Registered: Oct 2004 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

http://www.cnn.com/2010/HEALTH/07/29/georgia.right.to.die/index.html?hpt=T2

Lou Gehrig's victim: Kill me for my organs

Advocates can send info to news agency's to try to put him on the right road...

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

jeffinca11
LymeNet Contributor
Member # 25584

posted

awesome story.

Posts: 165 | From lymeland | Registered: Apr 2010 | IP: Logged |

grandmother
LymeNet Contributor
Member # 19908

posted

Any chance they'll sue KP?

Posts: 924 | From CT | Registered: Apr 2009 | IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

Sad that they are the researchers/jokers doing the Morgellons study---on our dollars.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

nenet
Frequent Contributor (1K+ posts)
Member # 13174

posted

Thank you very much for sharing this - what an inspiration he and his family are. The whole story is heartwarming (after the initial horror of the misdiagnosis of course).

I just posted it to my facebook. Hopefully it might eventually reach someone that knows someone with an ALS diagnosis.

At that point, any differential diagnoses are worth a shot.

--------------------
Dr. C's Western Blot Explanation

Lymenet Success Stories

ILADS Treatment Guidelines

Medical & Scientific Literature on Lyme

"Long-Term Antibiotic Therapy Improves Persistent Symptoms Associated with Lyme Disease"

Posts: 1176 | From KY | Registered: Sep 2007 | IP: Logged |

Remember to Smile
Unregistered

posted

Good find, Joe.
That first link expired, so use this for the article on Bart F. learning he has LD, not ALS:

http://www.nwpf.org/News.aspx?Item=3202

IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

-
KAISER PAPERS is NOT an official Kaiser Permanente site, but a patient advocacy site. You might start with this basic link full of startling details:

http://kaiserpapers.org/

The Kaiser Papers is an advocacy site opposed to several medical and business practices of Kaiser Permanente.

The Kaiser Papers offers personal accounts, allegations, news, links and suggestions for people to obtain information and assistance when they are navigating the health care system.

==================================

Then, this one about Lyme and Kaiser:
-----------

http://lyme.kaiserpapers.org/20-reasons-why-lyme-disease-is-undiagnosed.html

Kaiser Papers - 20 Reasons Why Lyme Disease Is Underdiagnosed

June 2010

This paper was written to outline some of the problems associated with the diagnosis of Lyme disease.

==========================

http://lyme.kaiserpapers.org/

Kaiser Papers - Lyme Disease Information for Kaiser Permanente Patients

- several links
-

Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

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