This is topic PLEASE HELP!!!! GI ISSUES in forum Medical Questions at LymeNet Flash.


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Posted by whatayear (Member # 15833) on :
 
Alright Im at my wits end Ive had all GI tests

that show some inflamation and a hiatal hernia

but none explains my 24hr a day severe upper

stomach pain, ive lost 44 pounds as of this

morning, I cant eat. Im living on liquids, the

pain doesnt go away and nothing relieves it. I

am also having alot of fatigue, headaches,

nausea, diareah with blood and mucus to constipation, alot of gurgling etc.

Can all of this be from lyme disease? I was

bitten by a horsefly a few weeks before all of

this started on the beach, and I remeber wondering

if they carried anything. Have I been reinfected?

What is the best way to kill lyme in the gut?

I have a perscription for LDN I havent started

I cant handle abx right now would deseret biologicals

borrelia series be a good place to start?

Isnt gut more related to Bart?

I had stool tested through parasitology center

didnt show anything and they are supposed to be

really good. Im not ruling out parasites but im

more concerned with the horsefly bite.

Any help would be greatly appreciated!!!!
 
Posted by D Bergy (Member # 9984) on :
 
Your mailbox is full.

Dan
 
Posted by whatayear (Member # 15833) on :
 
ill delete now!!! i was hoping id hear from you d bergy!
 
Posted by renny1985 (Member # 25222) on :
 
I have terrrrible GI problems as well. Diagnosed with lyme in April 2010 after 15 yrs of illness.

We have similar symptoms- though my GI pain is generally lower. I have lost 25lbs (I am 5'7" 115lbs). I am nauseous all the time, have little no appetite most days, and diarrhea.

I also have fatigue, headaches, severe leg pain, back pain, jaw pain, knee/hip pain, dizziness, heart palps, insomnia, etc.

So far nothing has helped my GI symptoms.. I believe IV Rocephin was starting to help but then my insurance cut me off and I couldnt afford it. I hope to go back on someday.

I have no advice, just can sympathize fully. It sucks so much. Hang in there and if you find anything out, let me know (and vice versa). Nobody should have to feel like this.
 
Posted by whatayear (Member # 15833) on :
 
Hi renny! I have leg pain, back pain, and jaw pain, and dizziness to! m really a walking zombie at this point! Are you not on any abx right now then?


It sucks so bad! I am really at my breaking point
my mom is here helping me take care of my two small kids but is leaving soon and I dont know what im going to do.

How long have you had the GI stuff? have you tried anything natural?

Reny are you on facebook? If so add me my email is [email protected] and we an stay in touch!
 
Posted by glm1111 (Member # 16556) on :
 
I had parasite testing over the years and it NEVER showed anything. When I did antiparasitc herbs and salt/c this is what came out of me.

www.lymephotos.com

PLEASE don't ignore the real possibility of parasites regardless of what the tests showed.

Gael
 
Posted by whatayear (Member # 15833) on :
 
I agree Gael, I assumed roundworms becuase my son started getting eczema with in a week of my GI issues.

And in the parsite world RW are thought to cause eczema!!

When the PCR testing came back NEG for anything

I was really upset, I was sure thats what I had.

Can parasites really cause me to be this sick???

Humaworm makes me have palps, salt/C I dont feel comfortable without a dr any other ideas?
 
Posted by sixgoofykids (Member # 11141) on :
 
Parasite testing is not accurate, I had visible parasites with Humaworm and my testing came out negative.

Yes, the worms CAN make you feel THAT bad!!! My first breakthrough in treatment was when I treated the gut.

Is there a particular ingredient in Humaworm that causes the palps? Are the palps a herx? If so, any treatment that hits the parasites might cause the palps.

Enula took care of my roundworms, Humaworm didn't touch them, though Humaworm helped with the tapeworm and other parasites.
 
Posted by renny1985 (Member # 25222) on :
 
Is Humaworm natural? Can I take it without a docs advice.. does it have side effects?

I have had the GI stuff 7 years now. I believe I was bit 15 yrs ago.. when I was 10 because that is when the leg pain developed.

About 10 years ago I started feeling sick all the time- headaches, fatigue, blegh. Then when I was about 18 I got the GI stuff which has been the worst of it BY FAR.

I am 25 now. I am in a PhD program, trying my best to live with all this pain and GI upset and fatigue etc. It sucks.

I am currently taking Ceftin 500mg 2x/day and Plaquenil 200mg 2X/day. The only thing that started to help my tum was the Rocephin IV... but I cant afford it so I had to stop just when it started helping.

I am scared to even know about parasites.. do those come from ticks as well? I am also considering bart as well...
 
Posted by sixgoofykids (Member # 11141) on :
 
www.humaworm.com

It's all natural. If you have a problem with any of the herbs, because they make each batch individually, they can leave that herb out.

Parasites come from food and other things. When your immune system is low, the parasites that we normally fight off, for example, a beef tapeworm (I had one), are able to grow.

Also, when you have GI trouble, you can have low HCL, and that also allows parasites to grow.

Bart can also cause GI trouble.
 
Posted by Lymetoo (Member # 743) on :
 
Upper GI pain could also be a stone in the bile duct or pancreatitis. Please see a GI Dr!!
 
Posted by whatayear (Member # 15833) on :
 
Ive seen 3 GI docs and had all the test, gallbladder came out in 06
 
Posted by Tammy N. (Member # 26835) on :
 
I agree with attacking the parasites. This is going to be my next step.

Another thought..... maybe go for allergy testing. Why not? Maybe there are certain foods that are antagonistic to you, without you even knowing. At least you won't be unknowingly added fuel to the fire. Good luck!
 
Posted by lymednva (Member # 9098) on :
 
Have you upped your probiotics? It could be you have yeast and need to do that. It has helped me and others I know a lot.

You may want to try adding in Saccharomyces Boulardi to what you already use. I had to switch from Theralac and TruFlora to VSL#3, which did the trick for me.

Good luck!
 
Posted by glm1111 (Member # 16556) on :
 
I have done Humaworm in the past several times. Right now I am taking Parastroy and having really good results. I have gotten rid of all the larger worms/parasites several yrs ago.

Hoping the smaller ones are the last of it. Parastroy has added enzymes and HCL along with the other herbs and I really think it has made a difference.

As six stated, you can get palps and lots of other symptoms when trying to get rid of parasites. They put up quite a fight.

They recommend staying on it for 6 mos with 1 mos break. Hulda Clark recommends a maintenance dose of antiparasitics forever. Gael
 
Posted by Lymetoo (Member # 743) on :
 
Yes, try the probiotics too.

I had my GB out in '05 and have had several bad bouts of upper GI pain. Last month the GI dr gave me meds for possible SIBO.

Not sure it helped, but I've been doing better since about 2 wks before he gave me those meds. Who knows? I suspect it will return.

I had to have an ERCP in '08 for a stone. Same symptoms now...no stone.
 
Posted by Lymetoo (Member # 743) on :
 
whatayear.. you're not on abx now are you?? ( I would suspect not!...but just asking )
 
Posted by whatayear (Member # 15833) on :
 
I havnt been on abx since june of 07' I was in remission prior to this stomach stuff! im on vsl 3 4 a day 4 grams of vit c and intramax. im also taking several things from soulan , san pharma and pekana....dont make any difference in how my stomach feels. They found a hiatal hernia which i think is pretty common but im going to try and find a chiro who does viseral manipulation to pull it down some and see if it makes an ounce of difference!
 
Posted by renny1985 (Member # 25222) on :
 
[Frown] I hate GI stuff. I am scared of the parasite treatment.. I am in a PhD program and don't want my bowel movements to become even more frequent or unpredictable. Maybe I can try to start it during a vacation or something.
 
Posted by heartof14k (Member # 20439) on :
 
Google "Bell's Palsey of the gut and other GI Manifestations of Lyme and Asoociated Diseases" by Virginia Sherr, M.D. It's a good source for Lyme and GI problems.
14k
 


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