My brain fog accompanied by this strange constant dizziness feeling seems to be my worse symptoms (although there are many more). Those of you who know what I'm talking about- what medication seemed to help you the most?
Is IV treatment much more effective than orals for this? Just would like to know what everyone felt worked best for them.
Posted by 2roads (Member # 4409) on :
Hey ny,
Sounds a lot like Bartonella. Levaquin and Rifampin are good choices. Let's see what others have to say.
Every time I see Trenton, New Jersey I smile cause I was born there.
Posted by kday (Member # 22234) on :
Rocephin and methylation support (B12, folate, P5P, etc).
So far, that's what helped me most. Methylation support probably the most powerful for neuro problems and anxiety.
I'm not normal, but this decreases symptoms a lot.
Posted by kimmie (Member # 25547) on :
I would say IV rocephin gave me the most relief in my symptoms. Oral flagyl caused an increase in symptoms but afterwards I was better.
Posted by sixgoofykids (Member # 11141) on :
For cognitive symptoms, Levaquin worked best. My LLMD said that if bart treatment didn't clear up cognitive symptoms, that we would have used IV next.
Posted by CherylSue (Member # 13077) on :
doxycycline 200mg BID
Posted by nellers78 (Member # 26774) on :
quote:Originally posted by kimmie: I would say IV rocephin gave me the most relief in my symptoms. Oral flagyl caused an increase in symptoms but afterwards I was better.
I found the same thing with Flagyl. I have the brain fog stuff the worst when I'm herxing from that. But I feel better with many other of my symptoms when on that abx.
Posted by stork (Member # 24167) on :
diflucan has helped most with head pressure. huge difference.
mepron has been helpful.
mino seemed to have good bbb penetration
(as you can tell, i'm pretty pleased with my current combo.)
biaxin was also good, although I've always considered it to have more of a suppressing effect
Posted by Tracy9 (Member # 7521) on :
Rifampin. Definitely Bart treatment.
Posted by onbam (Member # 23758) on :
Mepron/Zith almost completely eliminated my brain fog. Now I'm in the middle of a relapse, but Biaxin/Tindamax seems to be working...
Does anyone know if Mepron busts cysts? I've seen it suggested here and there, and it would make sense to me, as I've had consistently negative Babs labs and no hallmark Babs symptoms.
Posted by bcb1200 (Member # 25745) on :
I had this feeling and I hated it. I'm not sure what exactly made it go away or get better. Early on I was getting my TMJ treated, going to an axis orthogonal chiropractor for upper cervical adjustments, and then started my lyme treatment of Doxy / Flagyl.
At the end of my first 6 weeks, the dizziness was mostly gone.
Posted by unsure445 (Member # 15962) on :
Bicillin shots 3 times per week.
Posted by rmsfnc (Member # 27539) on :
Oral Flagyl. Increases with herx's at beginning but way better in the long run.
Posted by Mariski (Member # 24942) on :
I found that minocycline worked best both for my headaches and brain fog.
Rifampin did not seem to have much of an effect on either the headaches or brain fog. Currently I am on mino and Tindamax, and while I am still tired my brain is functioning much better than it was previously.
Posted by disturbedme (Member # 12346) on :
Truthfully, one of the things that helped my neurological symptoms the most was going on a gluten free diet.
I still have neurological symptoms, but they are not at the level they were before going gluten free.
Posted by lymeboy (Member # 24769) on :
It has been come and go with me from the beginniing. I havent made much progress and I have been on most meds mentioned here save for Flagyl.
Posted by jpsmom (Member # 23895) on :
I use nutramedix brainnerve clense pinella, brainfog is the worst. After levaquin my
Posted by deerose (Member # 27484) on :
Treating the undiagnosed and untreated Bartonella
Rifampin is the abx along with Dr B's protocol
My LLND has said I am doing well enough with the oral abx that it is unlikely i will need the IV.
She likes IV approaches and has lots of folks on it for so that says something. there are still persistent neuro symptoms however it is only two months in.
Just today this approach got me a few hours of a new level of better.
Untreated it surged with a vengeance, I wanted to die. Nasty.