posted
My brain fog accompanied by this strange constant dizziness feeling seems to be my worse symptoms (although there are many more). Those of you who know what I'm talking about- what medication seemed to help you the most?
Is IV treatment much more effective than orals for this? Just would like to know what everyone felt worked best for them.
Posts: 306 | From NY | Registered: Sep 2010
| IP: Logged |
2roads
Frequent Contributor (1K+ posts)
Member # 4409
posted
Hey ny,
Sounds a lot like Bartonella. Levaquin and Rifampin are good choices. Let's see what others have to say.
Every time I see Trenton, New Jersey I smile cause I was born there.
Posts: 2214 | From West Chester, PA | Registered: Aug 2003
| IP: Logged |
posted
I would say IV rocephin gave me the most relief in my symptoms. Oral flagyl caused an increase in symptoms but afterwards I was better.
Posts: 747 | From Utah | Registered: Apr 2010
| IP: Logged |
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
For cognitive symptoms, Levaquin worked best. My LLMD said that if bart treatment didn't clear up cognitive symptoms, that we would have used IV next.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
doxycycline 200mg BID
Posts: 1954 | From Illinois | Registered: Aug 2007
| IP: Logged |
quote:Originally posted by kimmie: I would say IV rocephin gave me the most relief in my symptoms. Oral flagyl caused an increase in symptoms but afterwards I was better.
I found the same thing with Flagyl. I have the brain fog stuff the worst when I'm herxing from that. But I feel better with many other of my symptoms when on that abx.
Posts: 256 | From Texas | Registered: Jun 2010
| IP: Logged |
posted
diflucan has helped most with head pressure. huge difference.
mepron has been helpful.
mino seemed to have good bbb penetration
(as you can tell, i'm pretty pleased with my current combo.)
biaxin was also good, although I've always considered it to have more of a suppressing effect
-------------------- long road since 2010 abx got me over the hump diet, detox, and herbs have got me to heal Posts: 174 | From CT | Registered: Jan 2010
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
onbam
Unregistered
posted
Mepron/Zith almost completely eliminated my brain fog. Now I'm in the middle of a relapse, but Biaxin/Tindamax seems to be working...
Does anyone know if Mepron busts cysts? I've seen it suggested here and there, and it would make sense to me, as I've had consistently negative Babs labs and no hallmark Babs symptoms.
IP: Logged |
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I had this feeling and I hated it. I'm not sure what exactly made it go away or get better. Early on I was getting my TMJ treated, going to an axis orthogonal chiropractor for upper cervical adjustments, and then started my lyme treatment of Doxy / Flagyl.
At the end of my first 6 weeks, the dizziness was mostly gone.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
| IP: Logged |
posted
I found that minocycline worked best both for my headaches and brain fog.
Rifampin did not seem to have much of an effect on either the headaches or brain fog. Currently I am on mino and Tindamax, and while I am still tired my brain is functioning much better than it was previously.
Posts: 40 | From New York | Registered: Mar 2010
| IP: Logged |
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Truthfully, one of the things that helped my neurological symptoms the most was going on a gluten free diet.
I still have neurological symptoms, but they are not at the level they were before going gluten free.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
| IP: Logged |
lymeboy
Unregistered
posted
It has been come and go with me from the beginniing. I havent made much progress and I have been on most meds mentioned here save for Flagyl.
IP: Logged |
posted
I use nutramedix brainnerve clense pinella, brainfog is the worst. After levaquin my
Posts: 443 | From The North Star | Registered: Jan 2010
| IP: Logged |
posted
Treating the undiagnosed and untreated Bartonella
Rifampin is the abx along with Dr B's protocol
My LLND has said I am doing well enough with the oral abx that it is unlikely i will need the IV.
She likes IV approaches and has lots of folks on it for so that says something. there are still persistent neuro symptoms however it is only two months in.
Just today this approach got me a few hours of a new level of better.
Untreated it surged with a vengeance, I wanted to die. Nasty.
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic