Topic: Has anyone read (or do you recommend) "Bartonella: Diagnosis & Treatment" by Dr. S?
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I see it online and it looks interesting but is very expensive.
Is it worth it? What treatments for Bart does Dr. S provide?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3139 | From Massachusetts | Registered: May 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From what I hear, he may not detail amounts of specific medicines - so if you are looking for a recipe, you may not find it. You won't be able to treat yourself from having just read a book. Some wish he would include exact details but I can see that he just can't as treatment has to be individualized and guided by a live, in-person LLMD.
However, from some articles I've read by him, he is a dedicated researcher and constantly working on learning more.
Houttunyia is one herb that he addresses. You can also read more about that at PubMed, at least regarding anti-inflammatory properties.
For whatever reasons, some here are not keen about him but I see others post that he has saved lives with his knowledge and perseverance.
I've been wanting to read his books but could never afford them. I know researchers and writers deserve remuneration but, for patients who are very early on left with nothing, most of us try to find what we can in other ways.
I've learned a lot from the few articles I've read. Having had some details years ago would have helped. So, I wonder what I'm missing in his book if I pick up so much just from a few articles here and there.
If you have the funds, though, it's always best to get a good book as it's a better vehicle for detailed explanations. You might ask your local lyme support group if they have any of his books in their lending library (if they have one).
You might want to read some articles by him or interviews with him here: ------------
nenet
Frequent Contributor (1K+ posts)
Member # 13174
posted
I was extremely disappointed in this book, to put it mildly. It made me very upset.
I feel that if I were to give my full opinion of its quality, it might seem overly negative, but I truly feel ashamed that I got snookered for my money. It's a mess, and it didn't contain anything useful to me at all.
It contains mostly images, of very poor quality, and what little text there is is repetitive and does not give any relevant information you couldn't find elsewhere on the internet, for free.
The drawings are so terrible they look like something from a 3 yr-old's doodles, and are completely useless for illustrating the topic. They are embarassing - I can't fathom why anyone would think they were suitable for publication.
The photos might have been anecdotally helpful if they were in focus, but honestly, given the quality of the overall book, I have a hard time trusting anything this person says or sells.
Just as an aside, I seem to remember a big commotion about this Doctor here several months or more back - something about not being allowed to even bring up him or his books here, due to a mutual agreement with this site, so not sure what's up with that.
So, that's my 2 cents. I really hate being negative, but this is my honest opinion.
posted
I bought it and have only skimmed it so far, but my first impression is similar to nenet's. The 20 page treatment section may be useful, but by far the vast majority of the books is devoted to photos of skin symptoms.
Posts: 8 | From OR | Registered: Nov 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
I call it The Rash Book.
It's largely poor quality photos of Bartonella rashes and skin markings.
The text is poorly edited and already outdated.
I'm not trying to be overly negative. I'm sure it was cutting edge Bart info when it was published.
He does ebooks, now. His latest Babesia book is an ebook.
posted
I thought you could down-load the entire book for free? Maybe I'm mistaken, but I thought I read that somewhere.
Posts: 246 | From south florida | Registered: Mar 2010
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
The photos can be bartonella, but all the photos look the same for chlamydophila pneumonia. It also does the red lines and my virus doctor said Herpes 4 does the red lines as well.
I was three years on 15 HH and not getting any better. I took rifampin and azithro for bart as well but this is also used for cpn.
In my opinion many bartonella patients have chlamydophila but the lyme docs are not aware of this. Cpn has always to be tested if you have bartonella. You can read all articles for free on personalconsult.com and then decide.
Posts: 1834 | From US | Registered: Oct 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The reviews here are helpful.
To see more reviews, you might go to Amazon and scroll down to the customer reviews. Several of the author's books are there, so search by his name to see all the titles they carry.
karen,
thanks for the detail about red lines / streaks with Chlamydia pneumonia (Cpn) and for Herpes 4 (HHV-4; EBV)), too.
For others who want to know more about Chlamydia pneumonia:
I agree that the book is not worth the cost. I have a copy if any one wants to take it cheaper then the going rate?
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I am the biggest idiot here as I bought the first book, was extremely disappointed and then bought the second believing maybe it would be better and it was exactly the same!!! Same pictures, same text, same! My poor little bart brain was sizzling with irritation.
If you already know you have bart this book is a complete waste of money. But if you are not sure and have received negative test results, this book might help you identify skin rashes and conditions specific to bart.
The pictures are extremely poor quality and black and white in the first book The second book has the same blurry pictures in COLOR. But there is actually less written information in the second book than the first.
If you want information on treatment protocols, forget it. Nothing works except the secret treatments that he only passes on to his patients.
I can condense the books for you in a couple of paragraphs. The skin conditions to look for are;
"cat scratch" streaks, red or purple stretch marks that are often not in areas of the body where these would normally occur,
pea size brown spots (like liver or age spots), loss of pigment, tiny blood blisters,
skin tags, crusty moles, papules, swelling in the body that appears to be edema but does not leave a dent when pressed,
thickening of the skin, nodules under the skin especially outside the thighs, that hurt when pressed,
indentations under the skin where the bone or collagen is eaten away (not clear what causes this),
Treatment; HH capsules (Zhang's Houttouynia), Cumanda or clove bud oil IN VERY HIGH DOSES. I was told by a couple of people who consulted with him that he told them to take 20-25 capsules of HH.
The babesia book is much better. I am glad I bought that one.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Wow. I'm shocked to read all of the above comments!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
nefferdun, thanks for the skin description. All of these can also be from chlamydia pneu and I think also from parasites in the tissue.
Stacy,
you can have a blood test IGG only is enough.IGG out of range means you have cpn. You can treat it with doxy and azithromycin and later you pulse in flagyl. It is a long and complicated treatment and you need to learn everything on the page cpnhelp.org.
As some treatment is the same as lyme treatment it can be combined to some extent. It has three forms of life and you need to treat them all but you start with treating the elementary bodies = EB, then the crypt.... It is like lyme, you need to kill them all. The cyst is called the crypt, the spirochet is the EB....
I think some people never recover from lyme as they also have cpn.
Posts: 1834 | From US | Registered: Oct 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Stacy,
Cpn links - and lab details - in the thread below.
In addition to the usual coinfections from ticks (such as babesia, bartonella, ehrlichia, RMSF, etc.), there are some other chronic stealth infections that an excellent LLMD should know about: ----------
. . . my ILADS-member LL ND had my Cpn tests run at this lab, so for a least this other chronic stealth infection, they seem to be in the top of the class.
For Cpn, the tests my ND ordered were: IgG Abs; IgM Abs; and IgA Abs.
Specialty Lab tests for various chlamydia strains (with Cpn being the top six on list):
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As for discussion of this book, this is important. Libel and slander are lies. I see nothing like that here.
Opinion presented in a well-meaning, respectful and objective manner, is healthy. Book reviews are done all the time, all over. I see this as simply a thread for customer reviews of the books. Amazon's reviews can round these out.
It's just about the content and value of the book to us, as patients who want to learn more but have very limited funds and must be very careful with each penny. Opinion may not necessarily present the full picture but we should still be able to read others' reviews and then decide for ourselves how to proceed. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Keebler and Karen, ' Thanks for the information! Hope you had a good Thanks giving!
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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djf2005
Frequent Contributor (1K+ posts)
Member # 11449
posted
Yeah, his books are a joke.
So is he.
-------------------- "Experience is not what happens to you; it is what you do with what happens to you."
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Horrible and totally upsetting. I credit his stuff for scaring the $&^*( out of a lot of people, thinking there was no hope and they would never get well.
Posts: 3528 | From US | Registered: Apr 2007
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