...and how did you do it? What meds, for how long?
My original symptoms way back a year ago were very Babs like. I had sweating, flushing, dizziness, etc.
Back in May, I tested borderline positive for Babs Duncani. My nero LLMD wants to treat using Coartem.
I may also start Artemisinin.
Just wondering how others cleared this nasty beast.
And..since I have little to no symptoms as of now, am I potentially opening up pandora's box if I start treatment?
Posted by seekhelp (Member # 15067) on :
Oh you could very well open Pandora's box! It's a nasty bug. I haven't figured anything out yet, but my feeling is it'll get you now or later. It's there waiting.
Posted by nefferdun (Member # 20157) on :
I encourage you to treat it before it takes over. When I recognized the symptoms over a year ago I asked for treatment and was ignored.
A year later it took over my life. I tested positive at that time. I am taking Mepron and zithro and slowly improving. It has been over 8 weeks.
I asked the same question as Babesia D is very resistant and I am worried about it. I got no responses at all so there are not very many people out there who have gotten rid of it.
I have never heard of Coartem. I will have to look that up.
Posted by elizzza811 (Member # 24713) on :
Is Mepron a 'must' for this type of babs? I think I'm positive for babesia microti, not duncani (yet), but there's no way I can afford this medication...as in ever...
Posted by BoxerMom (Member # 25251) on :
Malarone contains the same drug as Mepron (atovaquone) plus proguanil.
It is very effective.
Posted by nefferdun (Member # 20157) on :
The problem is you have to take three capsules of malarone to get 750mg of Mepron.. And malarone is not absorbed as well as Mepron which is liquid.
I know what you mean about the expense. It is unbelievable. Someone on here said if you qualify you can get it at a reduced rate. I think maybe even free - worth the try.
Posted by Wolfed Out (Member # 23727) on :
Yes, Glaxo offers a program called Patient Assistance. It's very easy to apply, and your doctor's office will become your advocate. In about 15 minutes, you could have a certificate for a 30-day supply of Mepron to pick up immediately. The rest comes in the mail.
Someone remind me, please. Is the Duncani strain also called WA-1? That's what I'm positive for.
Posted by jennie46 (Member # 20953) on :
Yes...WA-1 is Duncani
Posted by seekhelp (Member # 15067) on :
Malarone is VERY expensive too. Don't kid yourself. I have no doubts Mepron is absorbed better as I can handle 4 tablets of Malarone daily OK for the most part. Mepron is another story. It's the second ingredient in Malarone that some say hits WA-1. That's why I'm trying it. Mepron rips my stomach up. Not sure what is right or wrong.
Posted by bcb1200 (Member # 25745) on :
I am going to try Mepron. Fortunately, my insurance covers it. My copay is less than $100. Still pricey..but not the hundreds I've seen elsewhere.
Posted by Dawn in VA (Member # 9693) on :
Some say some success with Clinda + quinine.
I've had some success (at least no longer anemic- yay!) with 2 years of Mepron + Zith. But yet it comes and goes.
I'm CDC+ for duncani. That strain sure seems like a !
Posted by norcal (Member # 29829) on :
Hate to keep banging the Byron White Formulas drum but a-bab seems to be working for me. We may finish off with mepron zith.
Posted by Robert215 (Member # 30337) on :
Does the Byron Work?
Or do I stay on my Mepron & zith, & Bactruim?
What works better?
Posted by Tish (Member # 18029) on :
I wanted to post that about a month ago, I completed a 60 day course of cryptolepis extract (40 drops 3 x day) for babesia and it seems to have been effective. I have a microscope and monitor my progress weekly and so far my blood has been clear of the parasites. I had originally tried artemisinin pulsing for 4 months along with the Cowden protocol without success. The cryptolepis treatment was quite mild and I worked up on it slowly.
Tish
Posted by lululymemom (Member # 26405) on :
My daughter is taking the Cryptolepis with Bab1 and Bar1 and having good results..
She finished taking the A-Bab as well..
Posted by Imhis4life (Member # 26581) on :
Dawn in VA...
What do you mean by CDC positive for Ducani? Did your blood sample go to the CDC? My son and I both tested positive through Quest.
The CDC does not like Quest labs for that particular test so I was just wondering which lab did yours.
Thanks so much...
We are both taking Lariam and doing much better. I used to have bone crushing pain (thought I had cancer) but have improved greatly.
Posted by Dawn in VA (Member # 9693) on :
I meant "high enough titers".
I tested pos. with both Quest and LabCorp.
From what I know, the CDC will not even ALLOW Babesia duncani (microti I think they will) to be "reported" in VA; ie "it doesn't exist in VA".
Perhaps that's out of date now and perhaps they do, but not since last I checked. Grrrrr.
Posted by seekhelp (Member # 15067) on :
The CDC must be pretty dumb to say this. When a serial killer crosses a state line and commits a murder, does it not count if they are a native of the original state? I mean who really comes up with this stuff?
quote:Originally posted by Dawn in VA: I meant "high enough titers".
I tested pos. with both Quest and LabCorp.
From what I know, the CDC will not even ALLOW Babesia duncani (microti I think they will) to be "reported" in VA; ie "it doesn't exist in VA".
Perhaps that's out of date now and perhaps they do, but not since last I checked. Grrrrr.
![[rant]](graemlins/rant.gif)
!
![[Frown]](frown.gif)
When a serial killer crosses a state line and commits a murder, does it not count if they are a native of the original state? I mean who really comes up with this stuff?