bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
...and how did you do it? What meds, for how long?
My original symptoms way back a year ago were very Babs like. I had sweating, flushing, dizziness, etc.
Back in May, I tested borderline positive for Babs Duncani. My nero LLMD wants to treat using Coartem.
I may also start Artemisinin.
Just wondering how others cleared this nasty beast.
And..since I have little to no symptoms as of now, am I potentially opening up pandora's box if I start treatment?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Oh you could very well open Pandora's box! It's a nasty bug. I haven't figured anything out yet, but my feeling is it'll get you now or later. It's there waiting.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I encourage you to treat it before it takes over. When I recognized the symptoms over a year ago I asked for treatment and was ignored.
A year later it took over my life. I tested positive at that time. I am taking Mepron and zithro and slowly improving. It has been over 8 weeks.
I asked the same question as Babesia D is very resistant and I am worried about it. I got no responses at all so there are not very many people out there who have gotten rid of it.
I have never heard of Coartem. I will have to look that up.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Is Mepron a 'must' for this type of babs? I think I'm positive for babesia microti, not duncani (yet), but there's no way I can afford this medication...as in ever...
-------------------- Urge Congress on EMF Safety, FCC Must Change Exposure Guidelines for Microwave Radiation Exposure: http://tinyurl.com/2cjq54y Halt Universal Broadband, A Public Health Hazard: http://tinyurl.com/3x7xrmq Posts: 495 | From USA | Registered: Mar 2010
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Malarone contains the same drug as Mepron (atovaquone) plus proguanil.
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
The problem is you have to take three capsules of malarone to get 750mg of Mepron.. And malarone is not absorbed as well as Mepron which is liquid.
I know what you mean about the expense. It is unbelievable. Someone on here said if you qualify you can get it at a reduced rate. I think maybe even free - worth the try.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
Yes, Glaxo offers a program called Patient Assistance. It's very easy to apply, and your doctor's office will become your advocate. In about 15 minutes, you could have a certificate for a 30-day supply of Mepron to pick up immediately. The rest comes in the mail.
Someone remind me, please. Is the Duncani strain also called WA-1? That's what I'm positive for.
Posts: 829 | From MD | Registered: Dec 2009
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Yes...WA-1 is Duncani
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Malarone is VERY expensive too. Don't kid yourself. I have no doubts Mepron is absorbed better as I can handle 4 tablets of Malarone daily OK for the most part. Mepron is another story. It's the second ingredient in Malarone that some say hits WA-1. That's why I'm trying it. Mepron rips my stomach up. Not sure what is right or wrong.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I am going to try Mepron. Fortunately, my insurance covers it. My copay is less than $100. Still pricey..but not the hundreds I've seen elsewhere.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Some say some success with Clinda + quinine.
I've had some success (at least no longer anemic- yay!) with 2 years of Mepron + Zith. But yet it comes and goes.
I'm CDC+ for duncani. That strain sure seems like a !
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
Hate to keep banging the Byron White Formulas drum but a-bab seems to be working for me. We may finish off with mepron zith.
Posts: 342 | From northern california | Registered: Dec 2010
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posted
I wanted to post that about a month ago, I completed a 60 day course of cryptolepis extract (40 drops 3 x day) for babesia and it seems to have been effective. I have a microscope and monitor my progress weekly and so far my blood has been clear of the parasites. I had originally tried artemisinin pulsing for 4 months along with the Cowden protocol without success. The cryptolepis treatment was quite mild and I worked up on it slowly.
Tish
Posts: 31 | From TX | Registered: Nov 2008
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
My daughter is taking the Cryptolepis with Bab1 and Bar1 and having good results..
What do you mean by CDC positive for Ducani? Did your blood sample go to the CDC? My son and I both tested positive through Quest.
The CDC does not like Quest labs for that particular test so I was just wondering which lab did yours.
Thanks so much...
We are both taking Lariam and doing much better. I used to have bone crushing pain (thought I had cancer) but have improved greatly.
Posts: 66 | From Northern Virginia | Registered: Jun 2010
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I meant "high enough titers".
I tested pos. with both Quest and LabCorp.
From what I know, the CDC will not even ALLOW Babesia duncani (microti I think they will) to be "reported" in VA; ie "it doesn't exist in VA".
Perhaps that's out of date now and perhaps they do, but not since last I checked. Grrrrr.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
The CDC must be pretty dumb to say this. When a serial killer crosses a state line and commits a murder, does it not count if they are a native of the original state? I mean who really comes up with this stuff?
quote:Originally posted by Dawn in VA: I meant "high enough titers".
I tested pos. with both Quest and LabCorp.
From what I know, the CDC will not even ALLOW Babesia duncani (microti I think they will) to be "reported" in VA; ie "it doesn't exist in VA".
Perhaps that's out of date now and perhaps they do, but not since last I checked. Grrrrr.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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When a serial killer crosses a state line and commits a murder, does it not count if they are a native of the original state? I mean who really comes up with this stuff? 
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