I don't know if it matters, but he had a high bilirubin at birth and was very jaundiced. I didn't know I had Lyme when pregnant and had second bite while nursing him. I was just diagnosed in 2010.
Thank you so much for any help given here.
Posted by Lymetoo (Member # 743) on :
22: Possibly a variant of outer surface protein C.
23-25: Outer surface protein C (osp C).
28: An outer surface protein.
30: Possibly a variant of outer surface protein A.
31: Outer surface protein A (osp A). 34: Outer surface protein B (osp B).
37: Unknown, but it is in the medical literature that it is a borrelia-associated antibody. Other labs consider it significant.
39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.
41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.
45: Heat shock protein. This helps the bacteria survive fever. The only bacteria in the world that does not have heat shock proteins is Treponema pallidum, the cause of syphilis.
58: Heat shock protein.
66: Heat shock protein. This is the second most common borrelia antibody.
73: Heat shock protein.
83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.
93: The DNA or genetic material of Borrelia burgdorferi.
In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.
These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93.
This is true regardless of whether it is IgG or IgM..
----------------------------------
Here is his update written sometime around 2005.
---------------- The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93.
------Dr C of MO
Posted by Lymetoo (Member # 743) on :
In my opinion, you can't argue with the DNA of the Bb.
Posted by agape (Member # 24519) on :
Thsnk you so much for your expert feedback. I just don't know how I am going to get him treatment since the result says 'negative' and I go to the only LLMD in the state, and they told me today that they don't take children.
Is Samento safe for children? I don't like the fact that it is based in alcohol. It was too powerful for me, so I have some left.
Posted by momlyme (Member # 27775) on :
If the only LLMD in the state won't see children... it is time for a roadtrip!
PM me if you want the name of a LL pediatrician in New York.
Posted by seekhelp (Member # 15067) on :
LMAO. When I told my PCP this line, he tossed me out of the office and looked at me like I had three heads. I guess he did argue. He wasn't impressed with the source document. Oh well.
quote:Originally posted by Lymetoo: In my opinion, you can't argue with the DNA of the Bb.
Posted by ktkdommer (Member # 29020) on :
I will PM you after work today about Indiana ILADS doc who takes children. PA may be another option. I'm sorry you are going through this struggle. It shouldn't be a chore to get quality care for kids.
Posted by Lymetoo (Member # 743) on :
Agape... Do you have the list from Lymenet for OH drs? I do know it's quite lacking but wondering if you got a list.
seek... I dunno... DNA sounds good to me!
The best pediatric LLMD in the world is in CT.
Posted by agape (Member # 24519) on :
seekhelp, yeah, I'm dropping my PCP because she told me my positive test was "misinterpreted".
Yes, Lymetoo, thanks. I got that list from AnnOH and found the LLMD that I have been going to for a year. Her list was a God send. Momlyme,most people go to PA or out of state. You see...the ticks line up at the border of Ohio... they know there aren't any lyme ticks in the state!
I made an appointment with an OH LLMD that was recommended by the doc who finally found the Igenex test(and this two other Lyme forums). I will be begging the insurance company to help pay for her.
I just had to explain to my mother-in-law that my son can't have sugar and it is normal for a Lyme doc to keep info confidential for fear of treating Lyme with antibiotics for the necessary amount of time. Sigh, she doesn't get it.