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» LymeNet Flash » Questions and Discussion » Medical Questions » Son's IGenex results - need assistance

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Author Topic: Son's IGenex results - need assistance
agape
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My 8 year old son was tested for Lyme with IGenex Feb 21st. The test results say negative. But have these results listed.

IGG: 41+, 58+
IGM: 18 ++ (double plus) 30 +, 41 IND, 66+, 83-93+

I don't know if it matters, but he had a high bilirubin at birth and was very jaundiced. I didn't know I had Lyme when pregnant and had second bite while nursing him. I was just diagnosed in 2010.

Thank you so much for any help given here.

Posts: 31 | From Southwestern Ohio | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
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From the Western Blot explanation:

http://tinyurl.com/ffn3x


Bands.....

18: An outer surface protein.

22: Possibly a variant of outer surface protein C.

23-25: Outer surface protein C (osp C).

28: An outer surface protein.

30: Possibly a variant of outer surface protein A.

31: Outer surface protein A (osp A). 34: Outer surface protein B (osp B).

37: Unknown, but it is in the medical literature that it is a borrelia-associated antibody. Other labs consider it significant.

39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.

41: Flagella or tail. This is how Borrelia burgdorferi moves around, by moving the flagella. Many bacteria have flagella. This is the most common borreliosis antibody.

45: Heat shock protein. This helps the bacteria survive fever. The only bacteria in the world that does not have heat shock proteins is Treponema pallidum, the cause of syphilis.

58: Heat shock protein.

66: Heat shock protein. This is the second most common borrelia antibody.


73: Heat shock protein.

83: This is the DNA or genetic material of Borrelia burgdorferi. It is the same thing as the 93, based upon the medical literature. But laboratories vary in assigning significance to the 83 versus the 93.

93: The DNA or genetic material of Borrelia burgdorferi.

In my clinical experience, if a patient has symptoms suspicious for borreliosis, and has one or more of the following bands, there is a very high probability the patient has borreliosis.


These bands are 18, 22, 23-25, 28, 30, 31, 34, 37, 39, 41, 83, and 93.

This is true regardless of whether it is IgG or IgM..

----------------------------------

Here is his update written sometime around 2005.

----------------
The significant antibodies, in my opinion, are the 18, 23-25, 28, 30, 31, 34, 39, 58, 66 and 93.

------Dr C of MO

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymetoo
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In my opinion, you can't argue with the DNA of the Bb.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
agape
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Thsnk you so much for your expert feedback. I just don't know how I am going to get him treatment since the result says 'negative' and I go to the only LLMD in the state, and they told me today that they don't take children.

Is Samento safe for children? I don't like the fact that it is based in alcohol. It was too powerful for me, so I have some left.

Posts: 31 | From Southwestern Ohio | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
momlyme
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If the only LLMD in the state won't see children... it is time for a roadtrip!

PM me if you want the name of a LL pediatrician in New York.

--------------------
May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.

Posts: 2007 | From NY/VT Border | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
seekhelp
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LMAO. When I told my PCP this line, he tossed me out of the office and looked at me like I had three heads. I guess he did argue. [Smile] He wasn't impressed with the source document. Oh well.

quote:
Originally posted by Lymetoo:
In my opinion, you can't argue with the DNA of the Bb.


Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
ktkdommer
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I will PM you after work today about Indiana ILADS doc who takes children. PA may be another option.
I'm sorry you are going through this struggle. It shouldn't be a chore to get quality care for kids.

--------------------
Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome.

Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Agape... Do you have the list from Lymenet for OH drs? I do know it's quite lacking but wondering if you got a list.

seek... I dunno... DNA sounds good to me!

The best pediatric LLMD in the world is in CT.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
agape
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seekhelp, yeah, I'm dropping my PCP because she told me my positive test was "misinterpreted".

Yes, Lymetoo, thanks. I got that list from AnnOH and found the LLMD that I have been going to for a year. Her list was a God send. Momlyme,most people go to PA or out of state. You see...the ticks line up at the border of Ohio... they know there aren't any lyme ticks in the state!

I made an appointment with an OH LLMD that was recommended by the doc who finally found the Igenex test(and this two other Lyme forums). I will be begging the insurance company to help pay for her.

I just had to explain to my mother-in-law that my son can't have sugar and it is normal for a Lyme doc to keep info confidential for fear of treating Lyme with antibiotics for the necessary amount of time. Sigh, she doesn't get it.

[ 03-17-2011, 09:49 PM: Message edited by: agape ]

Posts: 31 | From Southwestern Ohio | Registered: Feb 2010  |  IP: Logged | Report this post to a Moderator
   

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