I know if I could get my brain to work I could research this more fully on my own, but oh my goodness the brain fog has me down.
I feel like I am not improving very much so I wanted to run my meds by some of you who are more experienced to see if I may need to ask my LLMD about adding something else.
I have a follow up with him in a couple of weeks and never feel like I am very prepared to ask good questions.
I am doing IV Rocephin 4 days on 3 days off (I am on my 7th week) Previously had been on Doxy or Mino at various doses.
Flagyl on the 3 days off of Rocephin
Rifampin twice a day 7 days a week
I have a positive Lyme test through Igenex and a clinical dx of bartonella. Diagnosed officially in 9/10, but symptoms for at least 3 years.
It seems as though I may not be attacking the "L" form? But I am not sure what the Rifampin does outside of possibly treating Bart?
I realize Flagyl is supposed to be a cyst buster and Rocephin just kills the spirochetes so that is why I wonder is something is missing. Not sure which abx would be a good addition?
Of course I am also on a number of supplemental type things like probiotic, magnesium, ALA, B12, Fish Oil, LDN. That's all I can remember but I know there are many more bottles in that cabinet.
One thing I wanted to mention is that I had been noticing some improvement in my energy levels and pain levels but I had to miss last week of my IV meds due to a port malfunction while out of town.
I didn't feel bad while off the meds that week, but when I restarted this week I have felt miserable. I didn't think it was a herx b/c I never had a herx when I first started on the IV.
I did get a note from my doc that my WBC is low, but I guess not quite low enough to stop the meds yet? Maybe that is why I feel so poorly this week?
I know there are a lot of question in this one post, but if anyone has any suggestions on any piece of it I would be so grateful.
Thank you all...
Posted by Lymetoo (Member # 743) on :
I'm not that well-versed as far as the L form. Maybe my brain isn't working yet this morning.
Do you have babesia?
Posted by tiredmom21 (Member # 28479) on :
I've not been tested and do not seem to have many of the clinical symptoms when looking at the chart.
Posted by Lymetoo (Member # 743) on :
Babesia causes brain fog and not treating it will keep you from getting well. Tests are not that reliable either.
It contains lists for the coinfections too.
Posted by lululymemom (Member # 26405) on :
It's my understanding that L Forms are Intracellular forms of the bacteria. In which case you would need to be taking a macrolide abx such as Azithromycin, Biaxin, etc..